Help Aalayah and her family waiting for transplant

I'm Aalayah I was diagnosed with dilated cardiomyopathy when I was just 18 months old when RSV attacked my heart I was put on life support called ecmo on December 2022 and spent several months including Christmas but I fought very hard making a recovery and got home with my family on loads of heart failure medicine's. Over the next year I was back in hospital needing ventilated again where I spent my 2nd birthday but I fought very hard again making another recovery and also got home for a while this was also short lived my mum and dad took me in to my consultant when they knew something wasn't right again this time it was fluid build this time I was only in 4 weeks this time and again I fought very hard getting home once more where I spent the only Christmas at home. During all these times the hospital were trying to get me to a transplant centre of which there is only two in the full united kingdom for kids like me during all my hospitals stays this was the same scenario my heart would worsen needing mechanical intervention twice to keep me alive. However on 17 of march 2024 I went into cardiac arrest in hospital and was put back on full life support again only this time it was central ecmo I got transferred to Freeman's hospital when again I couldn't get to great olmond street and had open heart surgery the very next day to be put onto a bridge to transplant machine called levetronics and I'm now on a Berlin heart however at one point the doctors had to tell my mum and dad that I suffered a lack of oxygen to my head that has left me with another monumental battle everyday but I'm still fighting very hard everyday along with my family to get better and as strong as possible for when I can hopefully get a second chance of a new heart and go home .

My family have started this go fund me page because as you see in the video I'm trying my best to relearn everything and making amazing strides however the machine that you see on the video was borrowed from my very kinds physios friend however that has to be returned very soon and my family and I really need one so I can use it every single day to progress me even further. Once I no longer require this machine my family will donate it to the hospital that cares for me just now so there will always be one there should any other patients ever require it or if they don't require it then they will donate it to someone just like me in the UK so they don't need to worry about trying to find the money to fund one themselves I hope you can help me in this journey I only get to use it when the very busy physios have time to fit me into to their ever stretched schedule and like mentioned the physios are just waiting on a call and it could be gone the same day. Even if you can't donate it would be very kind if you could share my story not just about the special machine but doing so also highlights organ donation and how vital it Is for so many kids and the lack of donations is very worrying for all parents in these circumstances

Thank you and much love Aalayah ❤️

https://www.organdonation.nhs.uk/