Help me to see a world specialist and finally get diagnosed

Hi my name is Sophie,

Many of you have been following my story on instagram for a while. You’ve seen me: slowly starve due to being unable to eat, go through 3 month hospital admissions, getting my first wheelchair, battling healthcare professionals to be taken seriously, move cities to get a wheelchair flat and access to more healthcare.

Turns out I’m still a medical mystery and now I am fundraising to see a world specialist for vascular compressions Prof Scholbach who is based in Leipzig.

I have been struggling with complex health problems for years without knowing what is causing it. Ive been on TPN (intravenous feeding) and this has had to stop due to problems associated with my jugular veins but the NHS is unsure what, why or how.

My heads swollen most of the time (I can actually put dents in my forehead just by pressing it with a finger) its causing pain in my head neck and eyes, brain fog, tiredness and much much more. Ive had to stop doing so much.

It is also possible that vascular compressions could also be the cause of my almost paralysed digestive system and other deteriorating health problems.

I hope to finally get a diagnosis after a lifetime of mysterious illness that have baffled all of my Drs in the UK. Im hopeful I can find answers with Prof Scholbach and of finding a treatment or way of managing my health problems.

I am a wheelchair user and do not want to fly (due to the high breakage record of wheelchairs on flights) so I will be driving all the way to Leipzig solo from Glasgow. As much as I am terrified of the journey it will be worth it.

I will be stopping with friends and family on the way there and back. This will help break down the 2,500 mile round trip into manageable chunks, give me rest days and save on costs.

I am hoping to fundraise half of the cost of the appointment and travel.

Please donate what you can, it will help me greatly.

Thanks

Sophie