Help Megan go private for FND tests and therapy
Donation protected
I am trying to raise money so that I can go private as opposed to wait 8 months on the NHS. I suffer with Functional Neurological Disorder and have seizures every day. The seizures and the FND affects almost every part of my body and sometimes I can be left paralysed below the waist for days. It is quite a complex disorder and my triggers vary. Mostly heightened emotions such as laughing too much, being too angry, too upset can cause a seizure and also loud noises/unexpected noises such as alarms etc but eating too also brings on sleep attacks and seizures. I suffer with severe memory loss and forget frequently who people are, where I am, what I have done that day etc and It can be very scary for me and damaging to people around me that have to go through it too. Other symptoms include loss of speech, unable to feel parts of my body for a long time, incontinence, dystonia, tics, tourettes.. the list is pretty much endless and nothing shocks me anymore if I wake up with a new symptom. I got my diagnosis nearly 5 years ago and received no help since. I would like to go private to get a second opinion and have tests I didn't get chance to have to rule out epilepsy for good. I have no Idea how much treatment/ my journey will be as I need to have an appointment with a neurologist initially which I know will cost around £250 to £300 and from there I will know what treatment I will need and how much it'll cost. I know that a private MRI costs around £500 so it all adds up quickly and currently I am not in work as due to the seizures I am not fit to and cannot hold a job down. I applied for benefits months ago for help and still not heard anything back yet. I can not wait 8 months as my mental health has taken a nose dive, I am on anti depressants to try and keep me going but every day is a serious struggle and I am not sure how long I can hold on for without help.
I have been using the platfrom Tik Tok to try and raise awareness for FND and I will continue to do this so that more people are aware of what this disability does to people like me and although we look "normal" we suffer daily with this hidden disability. It would mean the world to raise enough money to get some questions I have answered by the best of the best doctors and I am happy to film my journey and keep everyone who donates involved! and any extra money raised I can use to buy myself a commode to help on days when I can't go to the toilet by myself, glide sheet etc and I will definitely donate to FND.
I have attached my tiktok account so my journey can be followed.
thank you so much
https://www.tiktok.com/@meg.jacks?_d=secCgYIASAHKAESMgow4GSefwVxWSTTbYxlTtaBGow9dv8M3h%2Fmu2ChNiP37dol0V95079%2B20OVLUK8h2vtGgA%3D&language=en&sec_uid=MS4wLjABAAAArbkFgrI5U5qJcfUamyrZmUl9irngwdmbl86E89VhyDbmr93odcpHVxfSrsQTcbyS&sec_user_id=MS4wLjABAAAArbkFgrI5U5qJcfUamyrZmUl9irngwdmbl86E89VhyDbmr93odcpHVxfSrsQTcbyS&share_author_id=6783786846796956677&share_link_id=44E069ED-C923-4C2D-A2A3-02209B539F89&tt_from=messenger&u_code=dachge47a2ib1i&user_id=6783786846796956677&utm_campaign=client_share&utm_medium=ios&utm_source=messenger&source=h5_m
I have been using the platfrom Tik Tok to try and raise awareness for FND and I will continue to do this so that more people are aware of what this disability does to people like me and although we look "normal" we suffer daily with this hidden disability. It would mean the world to raise enough money to get some questions I have answered by the best of the best doctors and I am happy to film my journey and keep everyone who donates involved! and any extra money raised I can use to buy myself a commode to help on days when I can't go to the toilet by myself, glide sheet etc and I will definitely donate to FND.
I have attached my tiktok account so my journey can be followed.
thank you so much
https://www.tiktok.com/@meg.jacks?_d=secCgYIASAHKAESMgow4GSefwVxWSTTbYxlTtaBGow9dv8M3h%2Fmu2ChNiP37dol0V95079%2B20OVLUK8h2vtGgA%3D&language=en&sec_uid=MS4wLjABAAAArbkFgrI5U5qJcfUamyrZmUl9irngwdmbl86E89VhyDbmr93odcpHVxfSrsQTcbyS&sec_user_id=MS4wLjABAAAArbkFgrI5U5qJcfUamyrZmUl9irngwdmbl86E89VhyDbmr93odcpHVxfSrsQTcbyS&share_author_id=6783786846796956677&share_link_id=44E069ED-C923-4C2D-A2A3-02209B539F89&tt_from=messenger&u_code=dachge47a2ib1i&user_id=6783786846796956677&utm_campaign=client_share&utm_medium=ios&utm_source=messenger&source=h5_m
Organiser
Megan Elizabeth
Organiser