Help Monica receive her vital IVIG therapy

My name is Monica.

I was born with a rare blood disorder called, Primary Immunodeficiency or PI. For the first two years of my life I was treated with human immunoglobulins. What this means is; in fact my body is making almost no immunoglobulins. I’m not like most people.

Primary immunodeficiencies are disorders in which part of the body's immune system is missing or does not function normally. To be considered a primary immunodeficiency (PID), the cause of the immune deficiency must not be secondary in nature (i.e., caused by other disease, drug treatment, or environmental exposure to toxins). Most primary immunodeficiencies are genetic disorders; the majority are diagnosed in children under the age of one, although milder forms may not be recognized until adulthood. While there are over 430 recognized PIDs as of 2019, most are very rare.[1] About 1 in 500 people in the United States are born with a primary immunodeficiency.[2] Immune deficiencies can result in persistent or recurring infections, auto-inflammatory disorders, tumors, and disorders of various organs. There are currently limited treatments available for these conditions; most are specific to a particular type of PID.

I am to receive a treatment called IVIG ( IV with human immunoglobulins) . In order for me to receive my IV therapy I need to raise enough to pay for my copay at the time of each treatment; which is $ 1,400.00. This is the amount that the insurance will not cover.

This treatment is not a cure , but rather hope for a somewhat normal life. The treatment will be every 3-4 weeks depending on how my body responds.

As difficult as it is to ask each of you to help me, the alternative is that I do not receive treatment; thereby exposing me to life threatening infections, particular cancers that could ultimately take my life. I sincerely appreciate whatever you can do. Thank you. Monica