Stand with us in the fight against SMA 7-month-old
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Join Us to Save Nivansh: A Heart-Wrenching Battle Against SMA
This fundraising campaign is on behalf of Venkateshwara Goud and UshaRani, who are currently residing in India. They are seeking help for their son. You can reach them at Contact #: +91-9880567856.
Save Baby Nivansh from the clutches of SMA
9 months old Baby Nivansh has SMA type 2, struggles to breathe and move.
Requires BiPAP, physiotherapy, medications, and nebulization to strive through the day.
Urgently needs ZOLGENSMA, a gene therapy for survival.
Cost is $2.1 million
Doctor's Estimation Letter:
Genetic Report:
Venkateswara and Usha Rani are Seeking financial support to save their son's life.
“Even if we work for our entire lives, we wouldn’t be able to arrange enough money for our baby’s treatment.”
These are the words of desperate parents trying everything to help their son survive. He is barely a year old and life has already become hard for him. His pain and agony wrench his parents’ hearts but they are helpless, how can a normal man arrang 2.1 million USD, an amount that can only be dreamt about?
As Nivansh was growing up, his parents noticed that he was not able to achieve the milestones every child should have while growing up. They were concerned about him and after multiple tests, it was revealed that the baby was suffering from a rare genetic disease, SMA Type-2.
SMA might just be a 3-letter word, but it has wreaked havoc on the baby’s life. He has been fighting to survive since he was 4 months old. And with every breath which he draws, there is an inexpressible fear that he might be inching closer to an early end.
“He used to move his hands and legs when he locked eyes with me, and he also used to laugh to his heart’s content. Now, he can’t even hold my hands with his little fingers, and all I can do is watch his hand slip away from mine.” - his mother
The baby’s worsening condition can be brought under control with a miracle drug called Zolgensma. This one-time gene replacement therapy will cost approximately 2.1 Million USD crore, an amount completely out of reach for his parents.
The baby requires your help to fight SMA with Zolgensma! The huge amount of 2.1 million USD is a lot, but if all of you show your kindness and generosity, this milestone can easily be achieved. So donate now, and once you have donated, do share this fundraiser with your friends and family
Fundraising team (2)
Vyshnavi Sai Lakshmi
Organizer
North Miami Beach, FL
Pravallika Reddy
Team member