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Help Neve Receive IVIG Treatment In Poland
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Hi, we are trying to raise funds for our daughter Neve to receive IVIG treatment in America. Neve suffers with a condition called PANDAS. In simple terms this means that a part of her brain (basal ganglia) is inflamed and doesnt function properly. As a result of this she suffers with multiple seizures (often in excess of 100 per day), paralysis of the legs, hallucinations, OCD and depression. We have tried multiple treatments in the UK but unfortunately none of them have had the effect we hoped for, and we are now at a stage where the only treatment that could give her a chance at a normal life is IVIG. However this would mean travelling to the USA for private treatment as we do not have it readily available in the UK. Any help we can get would be really appreciated as we are desperate to give our daughter the chance of a normal life. Thank you for reading
***UPDATE***
Following a number of appointments, Neve has been accepted for treatment in Poland. She will have 3 rounds of IVIG over the space of 3 months (Aug/Sept/Oct) at a cost of £12,500 per round. Any help you are able to give would be amazing, thank you xx
Organizer
Vicky Collins
Organizer