Help Nicole weer (rechtop) leven
Donation protected
(For English see below)
Ik kan nooit meer langer dan 5 minuten rechtop staan.
Ik kan nooit meer langer dan 5 minuten rechtop staan.
Als moeder van 2 kleine meisjes is dit je ergste nachtmerrie.
Ik kan ze niet leren fietsen.
Ik kan ze niet naar school brengen.
Ik kan ze niet naar hun eerste zwemles brengen.
Ik kan geen koekjes met ze bakken.
Ik kan niet met ze naar een speeltuin, pretpark, dierentuin.
Ik kan niet eens een spelletje met ze spelen thuis.
Dag in dag uit breekt mijn moederhart weer in 1000 stukjes.
Eigenlijk kan ik licht en geluid ook niet verdragen en hun dus ook niet.
Dit was niet zo toen ik hun kreeg.
Door een zwaar invaliderende aandoening (POTS) kan ik bijna alleen maar plat liggen.
Als ik rechtop zit of sta, gaat er significant te weinig bloed naar mijn hersenen en stijgt mijn hartslag torenhoog, waardoor ik erg beroerd en zieker wordt.
Maar ook als ik lig voel ik mij ziek. Het voelt 24/7 alsof je koorts hebt.
Alles moet ik liggend doen.
Van visite liggend ontvangen tot mijn dochter eten geven.
Wat voel ik mij falen als moeder en persoon. Dat ik er niet voor mijn kinderen kan zijn zoals ik voor ogen had.
Om te zien dat je partner eraan onderdoor gaat... en je oudste dochter er zoveel moeite mee heeft.
Maar!! Er is hoop, voor mij en mijn gezin.
In Australië is een bewezen behandeling van 6 weken waardoor ik weer 100% beter zal worden.
Hier heb ik geld voor nodig, want in NL word dit helaas niet gegeven en de verzekeraars vergoeden dit niet.
Het geld is nodig voor de lange behandeling zelf, voor de reis, het verblijf, huur auto etc.
Help mij alsjeblieft weer rechtop leven!
Mijn gezin en vooral mijn kinderen en ik, zijn je eeuwig dankbaar!
English Version:
Who will help us?
I can't stand on my feet more than 5 minutes.
As a mother of 2 little girls, is this the worst nightmare of a mother.
I can't teach them to ride a bike.
I cannot take them to school.
I can't take them to their first swimming lesson.
I can't bake cookies with them.
I can't go to a playground, amusement park or zoo with them.
I can't even play a board game with them at home.
My mother's heart breaks into 1000 pieces again and again, every single day.
I'm so sensitive to light and sounds, and there fore it's hard to be around my kids.
This was not the case when I got pregnant. I never saw this comming.
Due to a severely disabling condition (POTS) I can almost only lie down.
When I sit or stand, there is too little blood going to my brain and my heart rate is soaring, making me feel very miserable and even more sick.
But also when I lie down I feel sick. It feels like having a fever 24/7.
I have to do everything lying down.
From receiving visitors to feeding my daughter.
I feel like I failed as a mother and person. That I cannot be there for my children and have to miss a lot of important milestones while they are growing up.
To see your partner dealing with this situation daily... and your oldest daughter having so much trouble with it is heartbreaking.
But !! There is hope, for me and my family.
In Australia there is a proven treatment of 6 weeks that will reverse the chronic disease 100%.
But I need money for this, because unfortunately this treatment is not given in Holland and the insurers company do not compensate this.
The money is needed for the long treatment itself, for the trip, accommodation, rental car, etc.
Please help me to get me on my feet again!
My family and especially my children and I are eternally grateful.
English Version:
Who will help us?
I can't stand on my feet more than 5 minutes.
As a mother of 2 little girls, is this the worst nightmare of a mother.
I can't teach them to ride a bike.
I cannot take them to school.
I can't take them to their first swimming lesson.
I can't bake cookies with them.
I can't go to a playground, amusement park or zoo with them.
I can't even play a board game with them at home.
My mother's heart breaks into 1000 pieces again and again, every single day.
I'm so sensitive to light and sounds, and there fore it's hard to be around my kids.
This was not the case when I got pregnant. I never saw this comming.
Due to a severely disabling condition (POTS) I can almost only lie down.
When I sit or stand, there is too little blood going to my brain and my heart rate is soaring, making me feel very miserable and even more sick.
But also when I lie down I feel sick. It feels like having a fever 24/7.
I have to do everything lying down.
From receiving visitors to feeding my daughter.
I feel like I failed as a mother and person. That I cannot be there for my children and have to miss a lot of important milestones while they are growing up.
To see your partner dealing with this situation daily... and your oldest daughter having so much trouble with it is heartbreaking.
But !! There is hope, for me and my family.
In Australia there is a proven treatment of 6 weeks that will reverse the chronic disease 100%.
But I need money for this, because unfortunately this treatment is not given in Holland and the insurers company do not compensate this.
The money is needed for the long treatment itself, for the trip, accommodation, rental car, etc.
Please help me to get me on my feet again!
My family and especially my children and I are eternally grateful.
(2016: Toen nog in staat om te fietsen met mijn dochtertje)
Fundraising team: Fundraising team (3)
Nicole van der Linden
Organizer
Maud De Vos
Team member
Michelle Korver
Team member