Help with expenses for Noah’s Heart transplant
Donation protected
Today is the day! Noah is getting a heart!
Please keep the team of doctors, nurses, donor family, Noah, and our family in your prayers. We are so blessed to have you all praying for him. I will update you all when I’m able.
#aheartforNoah
Hey Everyone,
First of all, we want to thank everyone from the bottom of our hearts for all your prayers, thoughts, and overwhelming generosity. Even in the face of our hardships we feel so blessed to be surrounded by so much love and support. We tell Noah everyday how many people are in his corner just rooting for him and loving him. He’s still fighting many battles but overall he’s been trending in the right direction. His biggest hurdles right now include getting him to a place where he can get his permanent pacemaker and getting him off his ventilator. Both of which are very difficult tasks. That being said, everyday he’s starting to look more and more like himself again which makes our hearts so full. He’s our little warrior❤️
As we’ve said before, all we can ask for are continued prayers and thoughts. It means the world and just know that not only do we feel so loved but the prayers and thoughts are working!
Amanda and Joshua’s post from Facebook.
Hey Everyone,
So as many of you probably realize we’re getting close to welcoming our sweet little babes, Mila and Noah, into the world. With that, we wanted to reach out and share some information with you, our family and friends. As some of you may have caught in previous posts, Amanda mentioned this pregnancy not being easy but never really went into detail. Unfortunately when she said this she wasn’t just eluding to the physical hardships that come with pregnancy (or carrying twins). We got some pretty difficult news at our initial anatomy scan.
Noah, our sweet baby boy, has a congenital heart defect called Single Ventricle Defect, which has caused him to also develop an arrhythmia called Complete Heart Block. What this means is: essentially his heart developed where both his major valves (the Aorta and Pulmonary valves) are in a single ventricle, leaving the other ventricle small and not functioning. There is no “repair” for this, just surgical interventions that can hopefully help reroute blood flow to optimize his cardiac function with just a single ventricle. With the complete heart block, it’s caused his heart rate to be significantly lower then it should, which in turn will require him to receive a pacemaker to help regulate his heart rate. So after he’s born he will be transferred to a different hospital to receive the best possible care, where they anticipate he will likely be for his first month.
We don’t share this information to upset anyone or for any kind of sympathy. We just want you all to know what’s going on. The good news is: despite all of these complications he is still growing and living his life with no knowledge that anything is wrong, which I should add is usually not the case. He’s always moving around and constantly fighting with his sister. He’s a strong little fighter, we know that for sure!
We know this is going to be very difficult in almost every aspect. Most of all in that we can’t all be together.
We may not respond to everyone’s individual messages but we will update as we can when it comes to delivery and subsequent surgeries. However, our time will be spread thin.
All we ask are for prayers and understanding.
We’re very nervous for what the future holds but more so very excited to meet our little ones who have already shown us their big personalities.
Organizer and beneficiary
Dawn Lamb
Organizer
McKinney, TX
Amanda Riffel
Beneficiary