Help Pera beat SMA Type 1

Hi there!

My name is Pera, and I'm only two months old. Unfortunately, I have SMA Type-1 disease. I was diagnosed when I was 9 days old, and I am the youngest and first early-diagnosed baby in Izmir, Turkey. SMA is a progressive genetic disease that attacks motor neurons. SMA mostly affects babies and children, making it hard for them to use their muscles, and activities, like sitting up, crawling, feeding and breathing become progressively more difficult. While there is no cure, there are treatments available that can significantly improve my quality of life.

The FDA approved the first gene-therapy drug for SMA Type-1 in 2019, Zolgensma. This is my biggest hope, but I have to take it before I turn 2 years old. This drug will help me preserve my muscular function, and I will get to play, walk and run like my peers. The only problem is that this drug is extremely expensive, with a price tag of 2.1 million (USD). Please donate anything you can to help me get to this life-saving drug as soon as possible!

Here is my Instagram account if you'd like to follow my journey: https://www.instagram.com/sma_pera/

*Gofundme started voluntarily. All donations will go directly to Pera in Turkey.