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Help Reenna Defeat MS & Lyme Disease

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***Update***

I've decided that the best option for treatment for me, considering how long I've had this disease, and how much damage it's done to my body- is to go for a month-long treatment at Stemaid clinic in Mexico. I've spoken to several Lyme patients who have gone to this clinic and had incredible, long-lasting results.


I received a stem cell treatment in December 2022 that truly brought me back to life. Before I received treatment, I feared that death was right around the corner. Although I've seen great improvements, I still have chronic pain, extreme food sensitivities and intolerances, intermittent brain fog and fatigue, and joint and muscle pain.

This treatment has the potential to cure me- as opposed to managing the disease for years to come and having to continually spend thousands of dollars on treatments and infusions for the rest of my life.

Getting a treatment like this could potentially let me live my life without a disability, and allow me to work and support myself, which I haven't been able to do consistently for 3 years now. It's been a long, painful road, but I truly believe this treatment could be life-changing. My first stem cell treatment was life-changing, and I know that if I get a treatment that is more targeted toward the proper condition, I can make a full recovery.

Thank you for your help <3

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For those of you who are just tuning into my journey, I was diagnosed with multiple sclerosis in 2021.

I was immediately put on immunosuppressant drugs that ravaged my body and left me bedridden for over 6 months.

I suffered from exhaustion, shortness of breath, extreme brain fog, debilitating pain, dizziness, constant nausea... the list goes on. It was the darkest point in my life, and reflecting on it now is still very difficult.

After my horrific experience with medication, some of my online friends saw what I was going through and raised the money for me to get a stem cell infusion to help stabilize me and improve my symptoms. The stem cell infusion was honestly a godsend. It alleviated so much of my pain and symptoms and brought me from a severity level of 10 down to a 3-4 on most days. I wasn’t cured, but I finally had a semblance of what feeling like “myself” was again. After feeling like I was dying for a year and a half, I felt like I had been given another chance at life, and I will be eternally grateful to those friends whose thoughtful generosity literally brought me back to life!

After I received stem cell treatment, I finally had enough energy that I was able to begin to research my symptoms and delve into other possible causes and treatments so that I could continue to improve. I knew that there was more going on in my body that I didn’t have answers for because I had some symptoms that were not consistent with an MS diagnosis.

About a month after receiving stem cells, and after doing an insane amount of research, I felt certain that I really HAD to be re-tested for Lyme disease. I had been tested for Lyme with negative results in 2021 (just prior to being diagnosed with MS), however, my recent research revealed that the tests that most doctors do (the western blot and Elisa tests) are very unreliable when it comes to diagnosing long haul Lyme disease. Close to 50% of the negative results are "false negatives", meaning that a test result comes back negative, but the patient actually does have the disease. This is what happened to me, and this is why I went undiagnosed for so long and never received treatment - it is a fairly common thing, and a simple Google search can lead you to stories from other people who this has also happened to.

I gave up on pleading with doctors to retest me for Lyme and paid $1,000 out of pocket to be tested with a more sophisticated test that medical insurance does not cover. I discovered that I was positive for several different strains of tick-borne diseases (Lyme disease) as well as several co-infectinos and viruses that were activated by the pathogens that had been invading my body.

Certain microbes are native to different areas in the US, so based on what the test finds in your blood, it can give you general information as to where you may have caught it. I was able to trace this back to a trip I took to Texas back in 2012 when I got a “flu” that manifested as glandular fever. I was traveling with two other friends who didn’t get sick, and I recall thinking that it was odd that I was the only one who had gotten this mysterious “flu,” even though we were sharing a tiny 1-bedroom apartment. It was a bizarre illness that I will never forget because of the intense symptoms. In retrospect, I know that it must have been when I contracted Lyme.

Because I’ve had this disease for so long, the treatment I have to undergo is quite intensive and has to take place over a longer period of time than if I had been bitten by a tick yesterday (acute Lyme is treated with antibiotics; chronic Lyme does not respond well to antibiotics and requires a much longer, extensive course of treatment). It has become multisystemic for me and has affected my brain, teeth, joints, and before I received stem cells, it was starting to affect my heart.

The CDC and FDA do not yet recognize other treatments that have been proven to be much more effective long term than traditional antibiotics in the treatment of chronic Lyme, and therefore these treatments are not covered by insurance and are entirely out of pocket. Believe me, I’ve tried to find ways, but unfortunately, it is entirely up to the individual to cover costs for this illness.

I'm going to have to undergo more testing, a lot of IV treatments, loads of medication, surgery, and possibly some other procedures that I'm not even aware of yet over the course of around six to nine months or so, none of which are covered by insurance. Hopefully, after these treatments have been completed, I will be disease-free and able to live my life again.

I have already spent tens of thousands of dollars over the past eleven years on medical expenses, trying to figure out what was making me so ill, and trying to treat my unexplainable symptoms. My 20s were plagued by mystery illnesses that would come and go that I now realize were Lyme flares.

Now that I know what it is, I know that I can beat this thing if I can get proper treatment.

I really want to get back to living my life and doing what I love, which is making music and content for my followers. I feel like this is possible, and I have hope for the future, which is something I couldn't say a couple of years ago.

I hope to document what I can from the recovery process so that I can help share my experience and help other people along their health journeys. I hope to be the person who I needed in my 20s when I was having a ton of health problems and couldn't figure out the source. I don't know why getting a diagnosis is SO difficult, but the more information that is available to people, hopefully, the easier it will be for them to find a road to recovery.

Thank you all for being on this journey with me. I generally find it really difficult to ask for help, so this is hard for me. If my music or content has brought you any value in life, it would mean the world to me if you could donate. I truly appreciate whatever you can do to help me, even if it's just sharing this page.

Thank you from the bottom of my heart. I look forward to celebrating once this is all over, and I'm free of this disease that has stolen so many years of my life. I will be strong and healthy again; I am determined.

<3

Donations 

  • Bob Fishman
    • $50
    • 6 mos
  • Zachary Gamble
    • $100
    • 7 mos
  • Augustine Mercado
    • $25
    • 7 mos
  • katrin newman
    • $25
    • 7 mos
  • Victor Kholod
    • $50
    • 7 mos

Organizer

Reenna D
Organizer
Cheltenham Township, PA

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