Help Ronan Conquer Epilepsy

Introduction:

Welcome to our GoFundMe page dedicated to our son, Ronan – a vibrant 3-year-old with an infectious smile who bravely battles severe epilepsy and global developmental delay. Despite facing over 60+ seizures daily, Ronan's spirit and joy shine brightly, inspiring all who know him. Join us in our mission to provide Ronan with the groundbreaking treatments he needs to live a life free of seizures.

Our Little Warrior:

Meet Ronan, our beloved son, whose laughter and resilience light up our lives. At just 3 years old, Ronan faces more challenges in a day than most do in a lifetime.

Ronan was born with no apparent abnormalities, but as he aged month by month, we noticed he wasn't meeting any of his developmental milestones. Fast track to 10 months of age, he was diagnosed with Global developmental delay and hypotonia (hypermobility).

Ronan started having seizures at 1 year old and was diagnosed with severe epilepsy; he experiences over 60+ seizures daily, with varying types of seizures, severely impacting his development and quality of life.

He receives high-care support from family, daycare and his therapists and has shown us some progress in his physical development, but he is not crawling, walking or saying any words yet. Ronan relies solely on a person caring for him, from feeding and toileting to meeting every need.

The Journey So Far:

Despite being on three different seizure medications, Ronan's condition continues to be a daunting battle for him, as he shows no improvement on his EEG and MRI scans. We have done genetic testing, which hasn't given us any results or explanations. The effects of his seizures are heartbreaking – the damage these constant seizures are causing to his brain, from extreme absence in his presence, disorientation, crying, and continuous drooling to gut issues and mood swings. Our recent visit to the specialist brought concerning news: Ronan's seizure activity has intensified, making the need for alternative treatments more urgent than ever.

A Glimmer of Hope:

We've discovered a ray of hope – a team of specialised doctors offering innovative treatments that are non-medicinal and could drastically reduce, if not eliminate Ronan's seizures. These therapies also promise to aid his physical and cognitive development, closing a massive developmental gap and potentially unlocking milestones like his first words, becoming mobile through crawling, or even taking his first steps. The first round of therapy will be heavily focused on healing his autonomic nervous system to reduce his seizures and open new neural pathways, which promise to aid in Ronan being able to understand how to move his body, feed himself, learn more sign language, become coordinated in his movements without flopping and falling over due to his low muscle tone.

Why We Need Your Help:

The path to these treatments and intensive therapies is paved with financial challenges we need help to meet. Your support can directly contribute to life-changing therapies for Ronan, allowing him to grow, learn, and thrive.

How Your Donation Will Make a Difference:

· Medical Treatments: Specialised therapies, treatments and tests not covered by government aid or support.

· Developmental Support: Provide resources for Ronan's cognitive and physical development through intensive and ongoing therapy.

· Family Assistance: Help us manage the associated costs, ensuring Ronan receives continuous care from specialised professionals not easily found in Australia.

Join Our Journey:

By contributing to our three-month-long campaign, you're not just donating; you're becoming a part of Ronan's journey toward a brighter future. Every dollar brings us closer to a life where Ronan can explore the world without the shadows of epilepsy and physical disabilities.

Multimedia Elements:

Witness Ronan's journey through our curated gallery and video diaries, showcasing his triumphs and challenges.

Your kindness can ignite a transformation in Ronan's life. Whether you donate, share our story, or send encouragement, you make a profound difference. Let's unite for Ronan, turning his dreams of a seizure-free life into reality.

With heartfelt gratitude,

Luandi and Ryno

If you would like to follow Ronan's journey and learn more about his diagnosis on Instagram, we will keep you up to date on his milestones there; please follow this Instagram link:

a_ronan_sunshine

If you would like to know more about the fantastic Specialists we are in touch with, please follow these links:

https://www.nurturingbrainpotential.com.au/ - Dr Gen (Brain hemispheric therapy and intensive motor, cognitive and speech therapies)

https://www.cannonhillchiropractic.com.au/ - Dr Cary Gilbert (Functional Neurology focused Paediatric Chiropractor)

https://pxdocs.com/ - Dr Tony Ebel (Where I first discovered the unique possibilities that can happen through natural interventions, vagus nerve healing and drug-free alternatives for seizures, Autism, ADHD, ticks and many other disorders that children and adults encounter. The podcasts from PX Docs available on YouTube provide life and perspective-altering information on health and healing).

Thank you for your kindness and support. Together, we can make a difference in Ronan's life and beyond.