Help Sally with medical bills from a rare disease

I'm Sally Komar. I've recently been diagnosed with an incredibly rare chronic debilitating disease, Stiff Persons Syndrome (SPS). I live on Social Security Disability. I have always been a fighter, but now I need your help to fund the extraordinary expenses I incur for the only available treatments. These treatments include monthly plasma-based infusions for the rest of my life and costly medications. Unfortunately, insurance covers only a marginal amount.  The infusions after insurance cost anywhere from $1,000-$16,000 per month depending on where we are in coverage. I’m anticipating $30,000 in medical costs this year alone. If I cannot obtain these treatments, my quality of life will severely decline and ultimately the disease will be terminal.  

There is hope with these monthly treatments but I have exhausted assistance programs. After receiving my first treatment, my pain totally subsided and I experienced normal life for the first time in years.  With your help, I can continue to receive these life saving treatments.

If you can't donate funds, please donate blood. It takes 2000 blood donations to provide one treat for me and others like me. All help will be appreciated.

 SPS causes, among other things, progressive muscle rigidity (that can tear tendons and break bones), stiffness of limbs and body trunk, and excruciating muscle spasms throughout the body (like a Charlie horse times 20 lasting 15 minutes to hours to days). 
To learn more about SPS click the link below: 

https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/stiff-person-syndrome/
Or 
Google NORD Stiff Persons Syndrome

Please forward this site to all your friends and request a forward again.  Contact me with any questions or concerns you may have. For more information about me or concern for a love one with similar symptoms, I’m available. SPS patients have been misdiagnosed from years to decades, being denied medication, treatment and dignity.  Increasing public and professional knowledge  is essential to SPS research and funding. Be part of the solution!