Main fundraiser photo

Help Savannah's fight with Encephalitis

Donation protected
Hello family, friends and community! Our daughter Savannah was diagnosed with Autoimmune encephalitis 10/1/2020. Encephalitis is inflammation of the brain. Encephalitis caused her to become wheelchair bound, have slurred speech, unable to walk long distances, extreme fatigue, seizures, tics, Parkinson's like tremors, food restriction, age regression, hallucinations, inability to handle pain, sensory overload and a slew of other symptoms. She had every symptom known except coma. Her case is severe. We came very close to losing her and in some ways we did. She was no longer our Savannah, just a shell of who she used to be. There was no light in her eyes. We could not accept that this is how she would spend her life. We were going to fight! She has spent the last 4 years fighting for her life. She had to learn how to walk, talk, open her brain to stored information that she no longer had access to, much like a stroke victim, she was unable to remember simple things like how to make a dollar out of change or what was a quarter and what was a dime. She had to take a year off from school. She has received every treatment that insurance will cover and then some-Immunoglobulin therapy, chemotherapy, steroids, antibiotics and antifungals, PT/OT, speech therapy, CBT, neuro feedback, reiki, chiropractic, acupuncture and the list goes on. The first 18 months of healing we had appointments 6 days a week and most days it was at least 2 appointments. We were consumed with her illness and healing. The hard thing about encephalitis is not everyone responds to treatment the same way, so what works for one may not work for another and the severity of the illness also plays a huge roll. So here we are almost 5 years into this hell we call encephalitis. Savannah has made huge strides in recovery. She is absolutely the strongest person I know. Our daughter is our daughter again and there is light in her eyes. She is able to do simple everyday tasks for herself, but we are not well. We still have lingering symptoms that keep her from living life, going to school and playing basketball which she loves with all her being. Savannah is still suffering from extreme psychogenic non epileptic seizers and tics along with other symptoms like gut and memory issues, tremors and the inability to be independent. Savannah has been accepted into a very intense year long program to heal her and get to the root cause of her illness. No one has been able to give us a reason of why she is still ill and why we have gotten to a plateau we can't seem to move forward from. She has had surgeries, countless treatments weekly, so many hospitals stays that every MD on both pediatric floors know her. We need to raise 24K for this treatment plan that is not covered by insurance and has to be paid up front before she can even start the program. We want our baby well. She deserves to have a life that is more than just being sick. If you have it in your heart to help our daughter, please donate. Every dollar counts! We will be documenting her progress during treatment on Instagram and Facebook. Some of you have already been following her story and for those of you praying for her, sending her healing thoughts and positive energy we truly appreciate it and love you all.
Donate

Donations 

  • Tyler Metcalf
    • $10
    • 16 d
  • Nikolas Betts
    • $10
    • 16 d
  • Anthony Verduce
    • $20
    • 16 d
  • ryan gottfredson
    • $20
    • 16 d
  • Christian Nelson
    • $20
    • 16 d
Donate

Organizer

Renee Barber
Organizer
Las Vegas, NV

Your easy, powerful, and trusted home for help

  • Easy

    Donate quickly and easily

  • Powerful

    Send help right to the people and causes you care about

  • Trusted

    Your donation is protected by the GoFundMe Giving Guarantee