Help Sonny get urgent treatment

Hi, my names Sharon and I'm fund raising for my young child Sonny.

So here's my boy Sonny.....so loving, kind and sensitive. He is a caring boy with a good sense of humour.

However, for the past 10 months, i've gradually witnessed him change. Sonny has got more and more poorly, and I see less of the boy he would normally be.

What started with vomiting and diahorea in September 2022 and a few visits to the doctors ended with a blue light trip to the hospital. After various samples were taken and tested, he was diagnosed with a very severe case of 'Gastroenteritis'. After 4 months Doctors & A&E agreed his symptoms would have passed by that time frame for that. So know they didn't know what was wrong. So then started a very long journey of various medications and a long wait for further investigation at our Local Hospital.

Sonny has been consistently vomiting every day since late September 2022. Initially, he was able to control it, but as the months have passed, it's got so bad that he's projectile vomiting. This started at 15 -20 times a day in September. However, hes now vomiting up to 70- 90 times daily!

Then he started with severe Diahorea several times a day for long periods of time & when he finally does get a bit of sleep it will wake him up to go yet again.

Some days, he can barely eat and gags at trying to eat 'Ready Brek'. His throat is so very sore and swollen from the acid. That he has to use a throat spray to try ease the pain. His gums hurt, so I can't imagine what this is doing to his teeth. He's up all night as he cant sleep due to the acid burning in his throat, stomach, severe chest pain and constant nausea.

Sometimes, he won't eat as he no longer wants to be sick as he's had enough. It's all so worrying , and I know he's very scared about what's happening to him, as am I.

His mental health is bad, and he's wanted to end it. He's only just turned 11, and that's so hard and devastating to hear!

I've had to push the local GPs and Hospital staff constantly to expedite referrals for Sonnys appointments and chase their refferals up to make sure they happen, as they haven't, even though they've agreed to expedite him!

They have no clue whats wrong with him at this stage or why this is happening to him.

I've done food diaries etc everything i can. I've even submitted samples for allergy tests at my own expense. To try progress things and find an answer.

After further intervention from myself, Sonny has finally got a referral to Sheffield Childrens Hospital. Sadly, though, there are nearly 300 other urgent children referrals on the list, so there's no way of telling when he may be seen. I've asked, and they have no idea other than maybe 7 months. The constant 4 day striking won't be helping either with getting the list down. It's really worrying to be poorly right now.

I've looked into private intervention now. As Sonny barely has any energy at all or any desire to do anything at all. He's got liver function issues, anaemia signs, high blood sugar, and a slow-moving bowel. From tests so far whish will only be getting worse and his weight loss.

The two procedures he needs to help identify his issues are endoscopy and colonoscopy im told, along of course, with consultation fees. These are in excess of £6,000.

As a single parent, it's just money I sadly don't have right now in this current climate. I'd do anything for my boy, and it distresses me that I can't do this for him. He should never have been. I got told I'd never have children, but he came to be. Pregnancy was hard, I had 7 threatened miscarriages carrying him. So he's my miracle baby. A fighter .....which he continues to try and be.

The NHS system is sadly so broken right now for everyone.

He will miss his whole last year at school and SATS before senior school, and he's so gutted not to be seeing his friends or doing any of his hobbies either. He needs to be back and enjoying life like he was.

Sonny said to me last week that he felt so poorly and ill that he felt like he was dying. He said to me:-

" MUM DO YOU THINK I'LL GET TREATMENT BEFORE I DIE?"

That broke me and has led me to do this to help him. As he's so very scared now.

This has gone on for way too long, and I feel totally broken. But he's worth being broken for. X

M