
Help Stephanie with therapy
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As a single mother, I will state as best as I know how. I've never been the type to ask for help but now is crucial, as time is the essence. My only child, Stephanie, who is 27 years old, has been battling mental illness for years. She wanted to take her life.
The first two times she tried, I was present and stayed by her side. She was under the age of 18, so she was a minor. I was allowed. The third time , she went in hospital a month before her 21st Birthday. She was considered an adult, so I was not allowed to be there with her. She was by herself, all those thoughts in her head. She asked for help, but she never got the help she needed. She decided to try to kill herself in the hospital. The hospital failed to check on her like they were supposed to, and that gave her the time to try to end her life. She hung herself right there in hospital. They finally realized what happened and tried to revive her. She died. It took them a while, but eventually they got her back somehow. She was in a coma for a little while, in hospital 3 1/2 months. Than she was transferred to a nursing home. She was turned away from some TBI facilities due to lack of insurance. Some places were non-profit. They wouldn't accept her, because of what she did. She was considered a liability. So I had no choice, I had to leave her in a nursing home. I fought hard to get her home. She was in nursing home from February 2016 to November 2017 before I was able to get her home.
She came home contracted, feeding tube, can barely speak, and spends most of her time in bed. She has what's called an Anoxic Brain Injury; caused when the brain is deprived of oxygen. Therapy is very limited right now due to insurance and because I have a disability myself. I'm very limited to getting a private therapist who can come to do home visits. She is only allowed to get 3 hours a week of Physical therapy, and 1 1/2 hours a week for Speech therapy. This is all the insurance will allow. And it is continuous for my daughter because she is on a Government program, called the TBI waiver. They say something is better than nothing, but it is definitely not enough for her. If she wasnt on this waiver she would get therapy even less than what she has. Stephanie is on what they call a longtime therapy, but its definitely not enough. It is so heartbreaking, because as the years go by with limited therapy, her contractions stay the same. Her legs get tighter without much help. She gets Botox every few month to help her muscles loosen up. But not having enough therapy is not helping my daughter. She is being maintained, not healed. The underlying issue stays the same.
Yes she is on a Government program, but I want my daughter to achieve some normalcy. So the little help she gets is unfortunately not enough. She needs to live, not just survive! Stephanie understands everything we say, she just cant verbally speak; she answers by different gestures. She can say no, and say the word yeah sometimes when the brain allows the words to come out.
If I could change this situation I would do anything I could! She is my rockstar in more ways than I can say. Stephanie is my life, my love, my everything. I believe there is hope, and I truly believe Miracles happen everyday. I hope this is one of them. I am setting up a GoFundMe page for my daughter Stephanie. It has been a long 6 years of limited therapy. I'm looking for donations to be able to pay for a therapist to come into my home privately as that is our only option right now. I have reached out to a few therapists, and was told it would cost $25,000 out of pocket for 2 years. It's only a start, but Stephanie is so worth it. She is so young. Please help me reach that goal, so I can get her more therapy to help her finally move forward.
Please share with your friends and family. She needs all the help she can get. Every little bit helps! Being her Mother is a blessing, and I want my baby to get better and come back to me. From the bottom of my heart, I appreciate any help for my daughter. She means the world to me, and deserves the chance to receive more therapy. Help her blossom, and to move forward. Thank you.
Organizer
Tina Frigano
Organizer
Moriches, NY