Help support Adeline in her battle with FIRES
Donation protected
Adeline Hallett is a beautiful, happy and loving daughter, big sister, granddaughter, niece, cousin and friend. Her smile lights up a room and her laugh is infectious!!
Four weeks ago, Adeline and her family (Mom - Amanda Farquharson, Dad - Jason Hallett, and little brother Blake) traveled to Orlando on vacation to visit her grandparents and Disney World. Unfortunately, shortly after arriving in Florida, she suffered a medical emergency and has been in the Pediatric Intensive Care Unit since March 15th. From that date on it has been a roller coaster of events, tests and emotions.
Adeline is being treated for Febrile Infection Related Epilepsy Syndrome (F.I.R.E.S.). This is an extremely rare condition where someone experiences a sudden onset of seizures following some type of infection that is typically associated with a fever. This condition is very challenging to treat by focusing on the seizures alone, and it is important to try to identify some underlying cause for the seizures. Although FIRES is rare, it is still a general classification, and we know that the underlying cause for Adeline is autoimmune related, based on her test results. The original infection that triggered this condition was thought to be a simple common cold virus that set off a chain of events to cause an autoimmune response. Adeline has been heavily sedated from the time she has been in hospital in order to protect her body and mind from potential damage.
This little girl is such an amazing fighter. Her parents and everyone around her are amazed at her strength and determination on a daily basis. We would take her place in a heart beat, if we could switch places with her.
The family is taking things day by day since Adeline went to the hospital, and they continue to stay strong and positive for Adeline. They are very grateful for an amazing network of family and friends and have had family visit in Orlando. They continue to have Jason's Mom and Dad helping to look after their son Blake, who is 11 months.
Adeline is a fighter, and we are here by her side every single day and night to help her fight this battle together. We love her to the moon and back a million times over. She's going to beat this, it will just take some time.
Next steps for us in terms of care will be a medical transport back to Canada to the Sick Kids Hospital in Toronto where Adeline's treatment and care will continue.
Raising money through this GoFundMe page will help provide financial support for Adeline and peace of mind for her family. Over the next days, weeks and months there will be financial obligations with all the ongoing medical, living and travel expenses that quickly add up. Adeline's mother, Amanda, will be taking time away from work to be with her in Toronto. These funds will be helpful in making this leave possible and in supporting the numerous trips between Toronto, ON and home in Fredericton, NB for follow up care.
Organizer and beneficiary
Jon Hoyt-Hallett
Organizer
Fredericton, NB
Jason Hallett
Beneficiary