Help support the Monreal family
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Please consider helping the Monreal family through this difficult time. Their circumstance is best explained in the words of their 16 year old son, Kylian:
Hello, my name is Kylian and I was diagnosed with cancer. Iam going through a tough journey in my life. When I was 15 years old last year after I had just lost my grandfather who I was really close to. I got diagnosed with a rare genetic disease called Neurofibromatosis
type 2 known as NF2 that creates tumors in your body that are benign Schwannomas and cancerous ependymona which Ihave both. These tumors grow in the spinal cord, brain and body which I have. There is no cure for this disease. I have tumors still in my body and on my body and 2 in my brain behind each ear that I will eventually lose my hearing and have nerve damage on one side of my face. These tumors damage your nerves and continuously keep growing in size and also form new ones. I had a risky long surgery to remove what they could of some tumors and was told I would probably never walk again because so much damage these tumors did to my spinal cord especially the cancerous ependymona. But I was and am still determined to beat the odds. I am walking a little with assistance a walker, but still need my wheelchair because I'm not able to keep balance and have enough strength in my legs and back. I'm taking medication to help and have to get botox for my muscles to work. I have to get mri's continuously as well as physical therapy. Get my liver and kidney's check and my hearing to see if I haven't lost any hearing. I have to get checked for the rest of my life. And all of these appointments except one are done in Phoenix at the Phoenix children's hospital. And now I may have to go under another risky surgery because I developed Scoliosis, 2 of them from the previous surgery and tumors. One that curves my spine to the side which is in beginning stages and one that hunches me over that causes problems with my breathing and gives me severe pain to were I can't do some movements. I'm at around 85 percent, which in these cases you need to have surgery because if not I will have difficulty breathing. This has had a big impact not just in my life, but in my family who l am very close to. It has brought us closer then ever, but it has also put stress on my parents financially. With all the drives to Phoenix, stays, food and some needs for my care. But with all this happening to me and my family it has not put my hopes and faith down. I am still determined to keep fighting. This disease will not bring me down. So with the bottom of my heart, l ask for what any help you can give please. I wouldn't ask if it wasn't needed and put in the position my family is like now. Thank you!
Organizer and beneficiary
Daniel Conrad
Organizer
Tucson, AZ
Jose Monreal
Beneficiary