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Hello everyone, I wanted to provide a second update on my situation. On August 29th, 2024, I had a near-death experience. I received a second infusion of an immunosuppressant medication called Infliximab (Remicade) for Ulcerative Colitis. The dosage was higher than usual, as recommended by the G.I. doctors, to expedite the remission process due to the severity of my condition. However, about 1 minute and 34 seconds into the infusion, I began experiencing severe chest pain, and breathing became increasingly difficult. My heart rate skyrocketed to 185 beats per minute (supraventricular tachycardia), and my blood pressure plummeted to a dangerously low level (around 60/70). If the nurses hadn't acted as swiftly as they did, I might not be here today. Thankfully, I pulled through. The reaction I had was due to a lack of blood and oxygen flow, causing my heart to overwork to compensate. I was rushed to the cardiac arrest unit, where I received a blood transfusion. This helped with the anemia and tachycardia, making me feel significantly better. However, shortly after, the G.I. team suggested retrying the Infliximab infusion at the regular dosage, this time with Benadryl to prevent any "allergic reaction." I refused, insisting on receiving the medication I'd been on for the past 4.5 years or a different treatment altogether. Consequently, I was given Entyvio instead. While I felt slightly better after the infusion, the relief was short-lived, lasting less than 24 hours. Since Entyvio is a slow-release drug, it can take four to eight weeks to fully heal the gut, meaning I wouldn’t see any immediate improvement. Two days after the Entyvio infusion, I was moved back to my previous room but began feeling worse. I was rushing to the bathroom every 2-5 minutes, and blood was pouring out of my rectum without any strain. The amount was alarming, and I quickly became weak and pale. The nurses had to assist me back to bed, where they took my vitals and noticed my heart rate had spiked again. The Rapid Response Team (RRT) was called, and I was placed in a diaper and closely monitored to ensure I didn’t try to get up on my own. That night, I used the bathroom 31 times, and every stool was bloody, leading to another bout of anemia. I was moved back to the cardiac unit for three days and received another blood transfusion to address the anemia and stabilize my heart rate. Afterward, the G.I. team started me on another immunosuppressant medication called Rinvoq, which has slowly improved my symptoms. However, despite some improvement, I still can't leave the hospital. My heart rate remains high, and the pain hasn't subsided much, so I still require monitoring. Unfortunately, this means I’m still unable to return to my regular routine, including work and self-care. The doctors are uncertain when I’ll be able to leave, but I’m hoping it will be sooner rather than later. I’ve updated the amount on my GoFundMe, as I didn’t anticipate being in the hospital for
34 days and counting. I’m asking for any help you can offer during this difficult time. Even $1 or a share can make a big difference. Thank you all for your continued support.
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Donations 

  • Ashanti Green
    • $5
    • 2 d
  • Erika Vergara
    • $100
    • 3 d
  • Catherine Carone
    • $100
    • 5 d
  • Raul Brito
    • $100
    • 5 d
  • Evelyn Giron
    • $10
    • 6 d
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Organizer

Tatianna Vergara
Organizer
Jersey City, NJ

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