Help the Thornhills in Boyd's Fight
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Hi Everyone! We've launched this page to fundraise for an incredibly special family, the Thornhills. In early 2023, the littlest of the bunch, sweet buddy Boyd, was diagnosed with rare diseases, myasthenia gravis and mitochondrial, that have abruptly changed their future lifestyle as a family. Boyd's got an magnetic personality, a heart of gold and a hilarious sense of humor. This is a lifelong road for their family. We hope that in his lifetime there is a cure for so many of these rare diseases. Until then, they're fighting for him, visiting hockey rinks and chasing garbage trucks.
Between the daily doctors appts and mounting treatment plans, Caitlin's ability to work has been significantly impacted. The medical expenses are piling up as they navigate endless complications with the insurance companies to cover their needs. We're at a crossroads that Caitlin, Jay and their immediate families can only keep up this pace for so long.
As Boyd's story travels, so many people have reached out to see how they can support. While Caitlin and Jay have a hard time accepting help, they're ready for it now. Please consider donating to support the Thornhill family. All donations will be going towards Boyd's continued medical expenses as they navigate this journey. We also encourage Caitlin and Jay to spend a small portion on their personal self-care and a happy escape with Rosie and Boyd <3
A story of their journey from Boyd's mom, Caitlin (Leddy) Thornhill:
After a year+ of trying to explain some complex (and scary) medical issues with Boyd, he was diagnosed with myasthenia gravis after a 16 day hospital stay and surgery. MG is a progressive neuromuscular disease that is rare in its own right, even more rare in kids and pretty much unheard of in 2 year olds. We have also been working with incredibly smart doctors who have determined that Boyd also has a mitochondrial disease; another rare one. (Zebras sometimes travel in packs!) We’ve been in and out of the hospital, all over the northeast for care and doing absolutely whatever possible to get Boyd the care he needs to live his best life possible. It has been a year of hospital stays, doctors appointments and more medicine than I even knew was possible in a little body, with no end in sight. He is nothing if not special. So special.
Organizer and beneficiary
Kimberly Woolf
Organizer
New Canaan, CT
Caitlin Leddy Thornhill
Beneficiary