Help to fight extremely rare cancer diagnosis

Hi! My name is Emanuela,i am 26 years old and since a year i have been fighting a extremely rare disease called CIC DUX4 Sarcoma! It’s a pediatric cancer which has no cure! So far in the state of Belgium i can be the first to have this sort cancer so doctors here and worldwide don’t know much about it.I have been through the most hard chemotherapies possible but with no help! I have also gone through radiotherapy and i have to go through it again because the cancer has spread to my lungs and lately my brain! And lately i went through a stroke from a tumor in my brain that the scans didn’t show,doctors told me was a miracle to still be alive and be able to stand on my feet! There was no hope from the beginning from the doctors at all! But i refuse to give up and even if there is no hope i wanna go through until the very end! That’s who i always was and am! I wanna ask to everyone who has the possibility to help even a little bit,i would be very grateful,because im hoping to start a clinical trial elsewhere for my sickness!Thanks a lot and lots of love to everyone!