Help Travis to learn about his rare disease-FOP
Donation protected
Our dear friend, Travis Logsdon, suffers from the extremely rare Fibrodysplasia ossificans progressive (FOP). FOP is one of the rarest and most disabling genetic conditions known to medicine. This dreadful condition turns muscles, tendons, ligaments and other connective tissues to bone, which imprisons the body and restricts movement.
There is an invitation only Family Gathering Conference in Orlando, Florida (November 14 – November 17, 2019) hosted by the International Fibrodysplasia Ossificans Progressive Association (IFOPA). This is rare opportunity to have researchers, clinicians, physicians and FOP patients together at the same time. The conference allows those afflicted with FOP to learn about the Resilient Living Program, ask questions of researchers and to meet with Doctors and Dentists who work with FOP patients.
Travis Logsdon is one of the 800 worldwide patients diagnosed with Fibrodysplasia ossificans progressive (FOP) and no treatment exists, but four clinical trials are currently underway.
The cost of the FOP conference is prohibitive since Travis must have a caretaker travel with him and special transportation is needed.
We want to help Travis attend this important event where he will be able to discuss his condition with FOP specialists.
Please help us send Travis to the International Fibrodysplasia Ossificans Progressive Association conference.
Anything you can possibly contribute, no matter how seemingly small, will be greatly appreciated. If you are unable to contribute monetarily, please pray for Travis to ease his constant pain and to find a cure for this dreadful and debilitating condition.
God bless you,
Friends and Family of Travis Logsdon
There is an invitation only Family Gathering Conference in Orlando, Florida (November 14 – November 17, 2019) hosted by the International Fibrodysplasia Ossificans Progressive Association (IFOPA). This is rare opportunity to have researchers, clinicians, physicians and FOP patients together at the same time. The conference allows those afflicted with FOP to learn about the Resilient Living Program, ask questions of researchers and to meet with Doctors and Dentists who work with FOP patients.
Travis Logsdon is one of the 800 worldwide patients diagnosed with Fibrodysplasia ossificans progressive (FOP) and no treatment exists, but four clinical trials are currently underway.
The cost of the FOP conference is prohibitive since Travis must have a caretaker travel with him and special transportation is needed.
We want to help Travis attend this important event where he will be able to discuss his condition with FOP specialists.
Please help us send Travis to the International Fibrodysplasia Ossificans Progressive Association conference.
Anything you can possibly contribute, no matter how seemingly small, will be greatly appreciated. If you are unable to contribute monetarily, please pray for Travis to ease his constant pain and to find a cure for this dreadful and debilitating condition.
God bless you,
Friends and Family of Travis Logsdon
Organizer
Travis Logsdon
Organizer
Mulberry, IN