Help Tynner Through His Medical Journey

Thank you everyone for your hard prayers throughout this unexpected, chaotic journey our 3 year old boy and ourselves are going through!! We still need a lot of prayer, because we have a long year ahead of us. We had an eye appt for Tynner on Monday, April 12th thinking that he had a little bit of a lazy eye. That Dr found what looked to be a detached retina so we got referred to St Louis to see a specialist on Thursday, April 15th. They found a mass in his right eye so we then got referred for the 2nd time to a specialist at the Children's Hospital and they wanted to see us the same day. We had been at appts since 9am till about 5ish and Tynner was exhausted and so were we. They found a tumor inside his right eye called Retinoblastoma and to prevent it from spreading they gave us a few options that all lead to removing the eye. We made a decision and they schedule an MRI for Tuesday, April 20th for a better look at the tumor and then scheduled his enucleation (eye removal) for Thursday, April 22nd. The hope with the enucleation was to prevent us from having to put him through chemotherapy and radiation, especially since it would lead to removing his eye anyways. His MRI went very successfully and there was no complications being sedated. His enucleation surgery was also very successful with no complications being heavily sedated and the eye removal and implant both went very smoothly. After his surgery he had a post Op appt the next day on Friday, April 23rd which was hard due to Tynner being absolutely terrified of drs now and took 3 people to put gel ointment in his eye, however, it was successful and his eye was looking the way it was supposed to. They took a biopsy on the eye to check for hereditary genes (nonhereditary means we don't have to worry about the other eye having it later on, hereditary would mean that it could form in the other eye as well and our other kiddos will be susceptible) and also checked it to see whether or not it is contained to just the eye and hasn't made its way out into the nerves or brain (contained means it stayed within the eye and we are done. Not contained means that it spread past the eye and he will have to start chemo and radiation treatments). The results for the biopsy containment came back on Thursday, May 6th and they found traces of RB tumor cells that possibly made their way into the blood stream. They scheduled us for a meeting with an entire team they assigned for Tynner in the oncology department the next day on Friday, May 7th. They recommend doing a very harsh chemotherapy that includes 3 different medication of chemo. This is the best therapy option to prevent any of the tumor cells from forming throughout his body since they are now most likely in the blood stream. Tynner gets his port put in on Tuesday morning, May 11th and will start his first set of chemotherapy directly after he wakes up from port surgery and he'll receive his 2nd dose for this set the next day on Wednesday, May 12th. For this type of therapy he will be admitted overnight every time and will also have to be given shots regularly to help kick his marrow into overdrive (making it create extra cells his body will need). For his first set of chemotherapy, he will also stay an extra night so they can give him the first shot to monitor for allergic reactions. The plan is for 6 months of chemotherapy. We are still waiting for the results regarding the hereditary biopsy, so be praying those are clean. He will be having a lot of appts for his treatments, labs, checkups, plus appts with his surgeon for his eye, and appts for his prosthetic for fitting and cleanings. Plus, due to my pregnancy we have my appts and the baby in 8 weeks and then her appts. Needless to say that we are looking at a very busy and hectic several months. With all of Tynner's appts being in Saint Louis, 4 hours away, gas costs a fortune and the wear and tear on our vehicle is already taking its toll and we really haven't even started, sadly, so affording all of that is scary and stressful. It's all slowly sinking in. We feel like our brains are fried and our hearts are shattered. We need a lot of prayer. There is still a lot of things to be scared about, but hopefully side effects of this harsh treatment are not too invasive and everything falls into place with his prosthetic, and affording these trips. Tynner has been told but doesn't understand what all his journey consists of which is to be expected for a 3 year old.  We are happy God has given him comfort and quick healing so far with the surgery and praying for comfort through this next part too. Tynner and Kyrie are both  asking a lot of questions which is awesome. We are all getting as prepared as we can if that's even possible. Be praying that This will all go as smoothly as can be expected with treatments such as his and that nothing unexpected or side-effect related occurs. Thank you for prayer and support through this crazy time!!