In search of a diagnosis for our little girl Neeve
Donation protected
Hi, We are Abby & Jamie the parents of Neeve.
Neeve is a little miracle, she was born at 26 weeks in 2021.
Neeve had a very rough birth she had no oxygen for a period of time causing brain bleeds.
Doctors told us to not get our hopes up, she caught infection after infection through her lengthy neonatal stay but she pulled through and she is such a special little girl.
Neeve has complex medical needs, she is on full time oxygen, Gastrostomy fed due to no swallow, hearing loss, partial collapsed lung, she has problems with her throat muscles causing her to aspirate this then causing recurrent chest infections, she cannot sit unaided, she has mobility issues she can go quite floppy to quite stiff.
We don’t have a diagnosis for Neeve which is extremely difficult.
We as parents know something isn’t quite right with Neeve, the problems she has don’t just happen for no reason, something has to be causing them and we refuse to believe it is just “prematurity.”
If we had a diagnosis then we can support Neeve the best we can and then we can also look to what it means for Neeve’s future and for our family’s future.
Our lives have turned upside down and we are desperate for a diagnosis which is why we have set this up to help raise money.
We have seen a consultant who has advised she has some tests done as she says something doesn’t add up and that they are missing something, these tests cost thousand of pounds.
I know times are hard for everyone so even if you can just share this it would be greatly appreciated.
Thank you so much Abby & Jamie
Neeve is a little miracle, she was born at 26 weeks in 2021.
Neeve had a very rough birth she had no oxygen for a period of time causing brain bleeds.
Doctors told us to not get our hopes up, she caught infection after infection through her lengthy neonatal stay but she pulled through and she is such a special little girl.
Neeve has complex medical needs, she is on full time oxygen, Gastrostomy fed due to no swallow, hearing loss, partial collapsed lung, she has problems with her throat muscles causing her to aspirate this then causing recurrent chest infections, she cannot sit unaided, she has mobility issues she can go quite floppy to quite stiff.
We don’t have a diagnosis for Neeve which is extremely difficult.
We as parents know something isn’t quite right with Neeve, the problems she has don’t just happen for no reason, something has to be causing them and we refuse to believe it is just “prematurity.”
If we had a diagnosis then we can support Neeve the best we can and then we can also look to what it means for Neeve’s future and for our family’s future.
Our lives have turned upside down and we are desperate for a diagnosis which is why we have set this up to help raise money.
We have seen a consultant who has advised she has some tests done as she says something doesn’t add up and that they are missing something, these tests cost thousand of pounds.
I know times are hard for everyone so even if you can just share this it would be greatly appreciated.
Thank you so much Abby & Jamie
Fundraising team: Team fundraiser (8)
Abby Smith
Organizer
Sarah Scargill
Team member
Aaron Lyons
Team member
Amie Marsh
Team member
Rebecca Williamson
Team member