Help Varya - Expensive Treatment for SMA 1
Donation protected
Hello dear reader!
I´m Varya from Russia, I´m only 1 year old and I have a devastating genetic disease SMA (Spinal Muscular Atrophy) Type 1. I can`t walk, sit, hold my head up. Without a treatment very soon I won`t be able to breath and my heart won`t beat anymore as all my muscles will atrophy.
But there is this magic treatment - Zologesma, which is too expensive for my family, it costs 2,3 million dollars.
My parents, relatives, friends and some other good-hearted, kind people are all collecting the money for the treatment that will give me a fulfilling life.
In Russia there are some cases where children could be saved as the collection was successful.
Me too, want to get this magical treatment so urgent! Maybe you are the one who could help me? Every little amount of money will help me to get closer to my dream. If many people know about me we could get the amount together. I really wanna live! Thank you so much in advance.
All the copies of documents about my disease you can find attached in my Instagram account
@help_varya – Russian and @gemeinsam_fuer_varya German/English
And you can also see me almost every day in a live stream.
Hallo! Das Schicksal dieses Babys hat mich zutiefst berührt. Varya kommt aus der russischen Stadt Georgievsk und hat eine seltene Krankheit: Spinale Muskelatrophie (SMA).
Eine Behandlung gibt es seit kurzem in den USA, es ist eine Spritze, die über 2 Mio Dollar kostet. Die russische Familie versucht mit allen Mitteln für die Kleine das Geld aufzutreiben. Jeder, wirklich jeder Euro zählt und die Zeit rennt davon. Durch russische Medien und social media wurden schon 40% der Summe erzielt. Noch leider weit entfernt vom Ziel.
Ohne diese Behandlung wird das Mädchen in paar Monaten sterben. Jeder Euro zählt! Lasst uns bitte gemeinsam helfen. Vielen Dank im Voraus!
Instagram :
@help_varya – Russisch und @gemeinsam_fuer_varya Deutsch/English
Hello! The case of this baby just moved me to tears. Varya lives in a Russian town Georgievsk and has a very rare disease SMA type 1. The needed amount for the treatment in the USA (which is only an injection basically) is 2,300 000 dollars
The family got through Russian social media and TV shows already 40% of the amount needed
which is still far from the goal. This girl will die this year without the treatment. Let's help together! Thank you so much! About the treatment
Instagram of Varya: @help_varya – Russian and
@gemeinsam_fuer_varya German/English
I´m Varya from Russia, I´m only 1 year old and I have a devastating genetic disease SMA (Spinal Muscular Atrophy) Type 1. I can`t walk, sit, hold my head up. Without a treatment very soon I won`t be able to breath and my heart won`t beat anymore as all my muscles will atrophy.
But there is this magic treatment - Zologesma, which is too expensive for my family, it costs 2,3 million dollars.
My parents, relatives, friends and some other good-hearted, kind people are all collecting the money for the treatment that will give me a fulfilling life.
In Russia there are some cases where children could be saved as the collection was successful.
Me too, want to get this magical treatment so urgent! Maybe you are the one who could help me? Every little amount of money will help me to get closer to my dream. If many people know about me we could get the amount together. I really wanna live! Thank you so much in advance.
All the copies of documents about my disease you can find attached in my Instagram account
@help_varya – Russian and @gemeinsam_fuer_varya German/English
And you can also see me almost every day in a live stream.
Hallo! Das Schicksal dieses Babys hat mich zutiefst berührt. Varya kommt aus der russischen Stadt Georgievsk und hat eine seltene Krankheit: Spinale Muskelatrophie (SMA).
Eine Behandlung gibt es seit kurzem in den USA, es ist eine Spritze, die über 2 Mio Dollar kostet. Die russische Familie versucht mit allen Mitteln für die Kleine das Geld aufzutreiben. Jeder, wirklich jeder Euro zählt und die Zeit rennt davon. Durch russische Medien und social media wurden schon 40% der Summe erzielt. Noch leider weit entfernt vom Ziel.
Ohne diese Behandlung wird das Mädchen in paar Monaten sterben. Jeder Euro zählt! Lasst uns bitte gemeinsam helfen. Vielen Dank im Voraus!
Instagram :
@help_varya – Russisch und @gemeinsam_fuer_varya Deutsch/English
Hello! The case of this baby just moved me to tears. Varya lives in a Russian town Georgievsk and has a very rare disease SMA type 1. The needed amount for the treatment in the USA (which is only an injection basically) is 2,300 000 dollars
The family got through Russian social media and TV shows already 40% of the amount needed
which is still far from the goal. This girl will die this year without the treatment. Let's help together! Thank you so much! About the treatment
Instagram of Varya: @help_varya – Russian and
@gemeinsam_fuer_varya German/English
Organizer
Olesja K. Hidalgo
Organizer
Bersenbrück, Niedersachsen