Help with medical bills and disability
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Hi my name is Rhys and I need help.
I unfortunately have several severe medical issues. Most notably an autoimmune disorder called Addisons disease that affects my adrenal gland, a heart/nervous system condition called neurally mediated syncope which causes me to faint or pass out under stress or during bad weather or if i just get up or bend over too often or too quickly and a series of nerve and spine problems partially the result of birth defects and partially the aftermath of meningitis that put me in a coma as a toddler. The 3 issues have a lot of overlap and cause me a great deal of physical and emotional pain but I am still trying to hang in there.
Over the summer I had the worst fainting episode of my life while in my bathroom. It resulted in my left foot being dislocated at the ankle and multiple fractures in my left leg. I was alone at the time and....painful scary story short I was on the bathroom floor for almost 2 full days before i could alert anyone that i was in trouble. The doctors said that the prolonged time on the floor with my leg damaged caused rhabdomyolysis in my left leg.
This is how my ankle looked while dislocated. It also severed the ligaments between my tibia fibula and talus.
I was in the hospital for about a week starting June 9th. I had to have surgery to put pins in the end of my tibia and fibula near my ankle. The pins or as the doctors called them "buttons" are anchor points for a metal cable they have wrapped around the bones to hold the bottom part of my leg together. It seems either the accident or trauma afterward severed all the connecting tissue holding the bones together and not causing them to split when i when i put weight on the leg. I have copies of the xrays and may put them up if people are interested
I lost around 40 pounds during the week i was in the hospital most of it muscle mass in my leg from the rhabdomyolysis and dehydration.
Like most people without insurance I was quickly put out the door once my life was no longer in danger. Thankfully i had already started the disability process so some things were covered under emergency Medicare. But i had no Physical Therapy and had to borrow crutches.
These pictures are of my foot and leg after coming home. they were taken by my friend because i couldnt and still cant bend far enough over to take with any clarity.
I couldn't afford follow up appointments and was already without a job. What savings i had were to get me through till my disability was approved and then 2020 happened and dragged out the process so i have started to have to beg for help. The pain in my leg has not really improved and no matter what i do it doesnt get any stronger. This could be the result of the rhabdomyolysis and/or something my doctor is concerned about called compression syndrome which i am just now learning about. I would need to get an MRI to be certain and surgery is the only fix. I was told during my hospital stay that further surgeries were often needed after an injury like mine.
The problem is i am in this black hole of insurance hell. I have lawyers representing me for my disability claims and no one I have talked with doubts that i qualify but its taking so long and the damage physical, emotional and finacal is pilling up. Another hit is that hospital bill collectors have started harassing me for the remainder of the bill of my hospital stay.
It looks to be until the new year before my disability is resolved or I get a court date. The same is likely to be true for Medicare/caid and i am even looking into food stamps. I feel awful asking but I have no real place to turn. My mother was my only parent and she died of cancer 3 years ago. The nature of chronic illness has been very isolating and i am not near any family nor could that really suppport me. If i were to move i would have to start the process of disability all over again in an another state anyway.
I am rambling i apologize its been a difficult time. Right now i am just looking to get enough enough funds to get me through to the end of the year and if God and people will enough to at least get an MRI to see if or what additional surgery is needed so i can walk more than 15 feet without my leg hurting to the point of tears.
Any money that gets raised is going directly to paying builds and toward getting the help needed to get through this really difficult life hurdle.
Thank you for reading and caring. Prayers, thoughts, and energy are welcome too. I know this is a hard time so many its why i waited so long to make this but i just cant wait anylonger. Please help if you can it all adds up
Organizer
Rhys Patterson
Organizer
Nashville, TN