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Help with physiotherapy and medical equipment

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Hi, Meet my gorgeous nephew Cove.

Please read the story from his mum

After a low risk pregnancy, during birth Cove went without oxygen for over 30 minutes causing severe brain damage (HIE grade 3) this means that Cove has complex needs, is fed through an NG tube, due to not having a swallow/gag reflex, requires frequent suctioning, has severe hearing loss in both ears, visually impaired and is extremely dystonic for most of his awake windows. Cove is also classed as 'life limited' and unfortunately with this diagnosis, it's very much a 'wait and see' with what he will be capable of achieving. Cove will have a diagnoses of Cerebral Palsey by the age of 2.

Currently there isn't anything avaliable on the NHS to help with HIE and we are having to do our own independent research and go private for therapies that will help benefit Coves future.

We have found ABM therapy which is to help 'wake the brain' following nine essential methods, which would give Cove a better quality of life and to help him be in less pain, by helping manage his dystonia.

We have completed out first intense session (two sessions a day over three days) and have found this to be beneficial towards Coves health and wellbeing and would love to carry on with this therapy. For Cove to reach his full potential, this therapy needs to be done monthly with a minimum of six sessions. A block of six sessions cost £450 and that's without taking consideration of travel and accommodation. Unfortunately due to these costs, we are unable to afford the therapy by ourselves and would appreciate any donations if possible, we would be hugely grateful and appreciate the generosity to help improve our sons quality of life.

Cove needs
Physiotherapy sessions £450 for 6 sessions - Monthly cost, not including accommodation
G-tube - £12,500 - NHS waiting is over 18 months.
Sensory equipment

Organizer and beneficiary

Kim Jobling
Organizer
England
Charlie Llewellyn
Beneficiary

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