Helping Hannah’s battle with Townes Brock Syndrome

Hi, I am a friend of sweet Hannah and her family Jon and Kaite Lee. I’ve created this fundraiser to help Hannah and her family. Hannah was born with a rare gene mutation called Townes - Brock syndrome. There is only about 4 children in canada diagnosed. She was born with malformed ears, profound hearing loss, no thumbs, an extra finger, a sacral dimple, kidney issues and an inperforated anus. She’s already had multiple surgeries and has a lot more to go. She was also born with eating struggles, and has a hard time gaining weight. This has resulted in her needing an NG tube to eat. We are all hoping this isn’t permanent but it’s going to be a long road for her. They are currently in the hospital getting trained on her tube so she will be able to come home with it. Hannah has appointments almost every week in either sarnia or london. She goes to physiotherapy, occupational therapy, a dietitian, a speech and language pathologist, audiologists, the cochlear implant team, a nephrologist, and multiple surgeons. This gene mutation is extremely rare, and doctors don’t know enough about it. This is creating a battle for Hannah and her family every single day. They’re doing everything they can to make sure Hannah is getting the care she needs. All funds raised will go directly to helping Hannah and her family. Thank you so much. Anything helps ❤️