Helping Kalel and his family

Hi my name is Layal and I am setting up this go fund me to help my friends Esther, Andrew and their beautiful 9 year old boy Kalel. Kalel is a bright, smart and wonderful little boy. He has recently been diagnosed with CIDP (Chronic Inflammatory demyelnating polyneuropathy).

It is a neurological disorder that involves the progressive weakness amd reduced senses of the arms and legs.

It is caused by damage to the fat-based protective covering on nerves called the myelin sheath. Symptoms of CIDP are: Tingling or no feeling in fingers and toes, loss of deep tendon reflexes (muscles), fatigue and feeling tired and unusual feelings in the body.

He is currently unable to walk unassisted and is in a wheelchair.

It can happen at any age and to anyone and is truly devastating to the person involved and their families.

CIDP is closely related to Guillain-Barré syndrome (in which the immune system mistakenly attacks the body) and is considered the long-term part of that disease.

Treatment for CIDP include the use of steroid medicine and other treatments that focus on the immune system, along with physical therapy.

Both Andrew and Esther have been by their sons side 24/7 taking turns where possible but both using up their long service leave, sick leave, parental leave and annual leave.

They need our help to help them survive this. They need to be able to still afford to live and pay their mortgage so when their little boy is home nothing changes in his environment.

We don't know how long recovery will take but we do know they are a strong united family who are struggling and definitely need our help as a community.

If you can help with any amount it would be amazing as it goes directly to the family.

Any help at all would be greatly appreciated but let's try and reach this goal together!