Helping Mathias w Apert Syndrome & medical bills

Hello! My name is Vanessa Chapeton. I am starting this GoFundMe for my beautiful nephew, Mathias, who was born with Apert Syndrome. Apert Syndrome is a birth abnormality caused by a gene mutation, which can occur in babies with no family history of the disorder, or they can inherit it from a gene in a parent. This genetic disorder is characterized by the premature fusion of certain skull bones. This early fusion prevents the skull from growing normally and affects the shape of the head and face. In addition, a varied number of fingers and toes are fused. With Apert syndrome, the skull is smaller than usual, which can put pressure on the developing brain.

Mathias is now four years old, and his first cranial surgery got postponed due to many factors, including the pandemic. But now, he requires emergency surgery to release pressure on his little brain with multiple other surgeries in about a year.

His first surgery will take place in Guatemala, the week of November 7, where Mathias and my amazing sister, Ivanna, his mother, live. Two neurosurgeons and two pediatric doctors have graciously donated their time for this surgery. While I help support them with their daily lives from here in the US, I cannot possibly cover his upcoming medical bills, including a slew of medications and unforeseen post-op care, and this is why I'm now asking for your support.

We are eternally grateful for your help.