Bianca is kicking MND's Butt

Hey legends

So update on our Beas journey.

MND motor neurones disease! Can’t eat a big fat one!

Absolute asshole of a disease!! Just Saying!

Bea has this special rare type to. You know our girl she gotta be different!

A stupid gene mutation of the SOD1 gene.

Bea is in her own electric wheelchair 90% of the time now. She is a bloody wild woman driving around haha she takes of on me where ever we go.

NDIS has been a wild frigging journey. Bea so lucky she has an amazing support coordinator Jedda Reed. This woman has managed to put a rocket up every person that needs to supply something for bea. She has not let anything get in her way. So lucky to have this girl.

Bea heads to Sydney this month to see the amazing professor or neurology Dr Matthew Kiernan from the mind and brain Centre at the University of Sydney.

She is hoping he has a clinical trial we can get her into.

She will be put through alot of tests and produces to see where her disease has progressed.

This is going to be very costly on the Hull family.