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Helping the Hales in Their Fight Against ALS

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At the age of just 29, a dear friend to many, Keegan Hale, was diagnosed with amyotrophic lateral sclerosis (ALS). ALS, commonly referred to as Lou Gherig’s Disease, is a progressive neurological disease that affects nerve cells in the brain and the spine that leads to the loss of muscle control. There is no cure for ALS and most die from the disease within 2-5 years.
 
Keegan began to experience symptoms of ALS in January 2020, just 2 months after marrying his wife, Mikie. As time passed, Keegan noticed increased loss of function beginning in his right hand and eventually migrating up to his shoulder. After nearly 9 months of extensive testing, Keegan was given his diagnosis.

This terminal diagnosis was a complete shock given his age, but what would make this even more shocking was that 4 days later, Keegan and Mikie would learn that they were pregnant with their first child. As one could only imagine, this news brought excitement and joy, followed by fear and sorrow knowing that Keegan would be limited in his capacity to help and likely would not be able to see his child grow up.
 
In June 2021, Keegan and Mikie welcomed a healthy baby girl (Blake) into their family. While Blake’s arrival has increased the family workload at a time when Keegan’s health is rapidly declining, they could not be more thrilled to experience the joy of being parents and having her as a part of their family.
 
Initially the progression of Keegan’s disease appeared to be comparatively slow to most cases, however, in recent months, his symptoms have begun to progress much quicker as he has experienced loss of function in his left arm, right leg, and chest (which impacts his speech).
 
Keegan remains employed to this point, but the time is fast approaching when working to provide for his family will no longer be an option. Routine activities will begin to not only become physically impossible, but financially difficult.

 
When thinking about a home, most people envision color schemes, furniture placement, and decor. In Keegan and Mikie’s situation, items such as ramps, lifts, widened doorways, and wheelchair-accessible bathrooms are the focal point. Modifications like these to an existing home bring significant cost especially given the current economy.
 
Additionally, as Keegan loses his ability to walk, they will require a vehicle with the ability to transport the family as well as a large motorized wheelchair.
 
It is projected that costs to modify the home and to purchase a vehicle will total more than $150,000. In addition, they will incur more care-related expenses, many of which are not covered by standard health insurance. For example, in the near future, Keegan will require round-the-clock professional care. This will not only be necessary, but extremely costly.
 
Keegan and Mikie are extremely grateful for the many ways people have already helped them in this fight. Your support has further affirmed God’s goodness in a time of hardship and has been instrumental in deepening their faith. From prayers, to funding trips for their family, to providing meals and other practical help, they appreciate all you have done.
 
Today, we are asking for your help in continuing this fight. All donations made toward their difficult journey will be used to ease their burdens and cover the mounting costs associated with ALS treatment and care.
 
On behalf of Keegan, Mikie, and the entire Hale family, thank you for your love, prayers, and continued generosity.
 
For more on Keegan and Mikie’s story, click here . 
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    Organizer and beneficiary

    Rachel Tufano
    Organizer
    Columbus, OH
    Keegan Hale
    Beneficiary

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