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Helping the strongest boy I know !

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This began with our amazing little boy, Mason, who began to feel under the weather. We were told it was likely just a common virus however, after a few weeks he wasn’t improving. I took him to Louth urgent care and they said he needed to head straight to Grimsby A&E by ambulance.

On arrival into Grimsby rests, he had a full blood count, scans and X-rays which showed a large shadow on his lungs. They confirmed he had pneumonia and a mass on his chest. On receiving his blood results, more worryingly, abnormal cells, suggesting leukaemia, were found. The doctors said he needed to go to Sheffield straight away via the brilliant Embrace ambulance team.

Once he arrived, Mason went through some of the worst procedures you can imagine for a child.

Three cannulas, bone marrow biopsy, insertion of Picc line, chest drain and lumbar tap all whilst struggling with being constantly sick along with multiple meds, which come with a whole host of side effects.

Did he complain? NO, not once! He absolutely got on and did it. Mason was in ICU for about a week in an unstable condition requiring oxygen and constant monitoring of his stats.

It was then confirmed Mason has T-CELL ALL which is an aggressive form of leukaemia. He didn’t really understand what was going on but after some explaining, he had a pretty good idea of what was happening.

His prognosis so far is good but the next four weeks are the ones that will determine his next treatment phases.

He was then moved to a ward and started to stabilise. We have his short term treatment schedule but have been advised that his treatment moving forward will be for a duration of 2-3 years.

In the first phase, he will be travelling to Sheffield 2-3 times a week for port insertion, IV chemo, lumbar puncture bi weekly to administer chemo to his CNS, monitoring, blood tests and meds reviews.

As you can imagine, he is extremely high risk of infection due to low immune system caused by a combination of strong steroids and chemo. He is such a happy boy and hasn’t complained about anything, just wants to be treated as normal however understands his needs are increasing such as needing to rely on a wheel chair, coping with hair loss and a host of other things.

We are able to receive some financial support for through DLA to help with various expenses but as you can imagine, it will only stretch so far. DLA doesn’t kick in for 3 months and we just want to make sure our boy gets everything he needs to help him through his journey.

He is now home and is doing great but we know it’s a very long road ahead.

This is to help Mason with various things including:

Huge travel costs from Louth to Sheffield Hospital multiple times a week
  • Parking
  • PPE at home
  • Adaptive furniture
  • Anti-microbial bedding/towelS
  • Electric bills due to increased need to wash clothes/bedding more frequently
  • Cleaning products
  • Any additional things he needs to help make his journey as successful as possible.

Obviously, we don’t expect to get anywhere near this target but just put something in there. We naturally hate asking for help, especially financially, but this has destroyed us as a family and no child or parent should have to go through it. We will do anything we can to get him whatever he will need.

I will also be planing multiple fundraisers for the hospital and charities that helped us in the early stages in hospital and will share that when it gets going. We have met some amazing doctors, nurses and hospital staff and are forever grateful for them.

Thank you all for your support and help, it means the World to us!
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Donations 

  • Richard Thomas
    • £100
    • 2 mos
  • Katen armstrong
    • £20
    • 3 mos
  • Christina Garcia
    • £50
    • 3 mos
  • Helen Stubbs
    • £5
    • 3 mos
  • Anonymous
    • £10
    • 3 mos
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Organizer

Ian Taylor
Organizer
England

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