HELP KRIS KICK LYME DISEASE
Well, Hello There!
I am 24 years old and I have been suffering for more than half of my life from Lyme disease and its debilitating co-infections; (I was bit by a tick when I was 4, 12, & 17 years old, & was treated with doxycycline each time) I had been misdiagnosed for many years, experiencing symptoms such as chronic pain, GI issues, and joint pain. During the past 12 years on my journey to discovering that I have this horrific disease, I have been diagnosed with a laundry list of other things: JRA, Fibromyalgia, leaky gut, interstitial cystitis (with weekly DMSO injections), gastritis, gastroparesis, and kidney stones. I have arthritis in multiple places and have had numerous injections, as well as physical therapy treatment. I am now intolerant to gluten, oats, food preservatives, MSG, dairy, caffeine, soy, sugar, alcohol, and more.
The worst thing about this invisible illness is just that; it’s invisible. There are many parts to this disease that those around me don’t get to see. They don’t get to see the relentless pain that travels around my entire body, or my limbs that randomly fall asleep with pins and needles. They can’t see the headaches that take away my vision or the pain in my jaw that has left me living off of baby food. They cannot see that I am freezing cold all the time, that I lose massive amounts of hair on a daily basis, and that sometimes the twitches/tiks are so bad that I can’t express the words my brain wants to get out. A huge part of this disease that is NOT often talked about is the anxiety, irritability, fear, and depression that follow you around everywhere you go like your own personal dark cloud; this is because the bacteria are now in my brain causing inflammation. People don’t see how weak I have become and that some days I just want to give up. They don’t see me curled up crying in the corner just wishing this agony would end. The joint pain is crippling, every single muscle hurts to the touch, my skin feels like paper, and I am overwhelmed by the fatigue. The shooting and stabbing pains go from head to toe, and never go away; my body feels like a pinball machine every single day.
I have given up on driving, as it scares the hell out of me when all of my senses are on overload and halfway to my destination I forget where I am going. The arthritis in my knee and hip prevent me from standing, sitting, walking, or laying for any amount of time. My chest flutters and I get dizzy just from standing up; and I can’t take a shower on my own because I have passed out numerous times and fallen. I am losing my memory more and more each day; within seconds I will forget what I am doing or what I was saying.I have gone through some really dark and scary times during this illness…its inevitable with this disease I have learned. I am mentally, physically, and emotionally drained from this, there is a light at the end of this tunnel that I am trying to get to in order to get myself back to a healthy and happy me. This is why I am reaching out for help, insurance will only help so much and the rest is up to me.After a failed PICC line due to blood clots in April, 2017, I now have a Hickman catheter in my chest that sits into my heart for IV antibiotics (every 12 hours).
I go for weekly labs and a dressing change to maintain and keep my LLMD updated. we are hoping the Hickman will remain in place for the remainder of treatment; anywhere from 6 months to a year.
My LLMD has prepared me for the harsh reality that there is a very long road ahead of me and that there is a 99% chance that my health will drastically decline more once the antibiotics start to kill the bacteria, as my immune system is not strong enough to rid them as fast as they die off.
My insurance company covers everything except for
my monthly LLMD visit (an hour and a half drive) at $250.00 cash. My detox supplements which include; NAC, Milk thistle, glutathione & activated charcoal, as well as my nutritional supplements such as coconut oil, probiotics, multi-mineral, multi-vitamin, GFSE, MSM, Papaya enzymes, & herbal tinctures are also NOT covered by insurance. It also does NOT pay for daily B12 injections from Rye Beach Pharmacy (receipt shown above)
THE PLAN!
The next phase of my treatment is vital to my healing, and includes a weekly Glutathione & Vitamin C injection through my Hickman catheter, which is once again NOT covered by insurance at $150.00 each. This injection is crucial in accelerating the detoxing process.
ALL OF THIS- FROM A TICK!!!
These bacteria are spiral-shaped and they corkscrew their way through every tissue, organ, and bone in your body causing damage wherever they go. Also, these bacteria knowingly avoid treatment areas and are able to change their shape and even mimic non-threatening cells. Bacteria are protected by intelligent biofilms that don’t allow antibiotics to do their job, as well as the person’s natural immune response. When Lyme disease is not treated early and properly, it can be debilitating or fatal.
If you have read this, I would like to say thank you for your time and to please share on social media to raise awareness of Lyme disease, and the brutality it takes out on its sufferers!
Any donations would be greatly appreciated. Please help me regain my life back so I can help others who are in the same position as I am.
I will post updates as often as I can!
With Love,
Kris