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Help! Fix my spine and beat MRSA!
Donation protected
Hi. I wish I was here trying to crowdfund my upcoming wedding, but the universe has decided otherwise. Everyone knows about my difficulties with my back and my slipping discs and maybe you know about my previous battle with MRSA. Well, right now I am completely up the proverbial creek and I don't know what else to do.
I am currently fighting some serious infections, one of which is the return of MRSA and this time it is manifesting in my blood and as osteomyelitis in my spine. It has picked this delightful moment to infect me when I was already suffering an undiagnosed difficulty with my discs and nerves again, this time resulting in partial paralysis of my right leg. Dr. Shaffer at Wake Forest, of whom we will speak soon, has informed me that this paralysis could become permanent if I can't figure out a way to get it treated properly. Paralysis aside, I cannot even stand up for more than about a minute at the most, nor walk. Tyler has been pushing me around in a whieelchair when we go into public, or I've been using a walker which helps somewhat. I'm only 36.
So I was recently hospitalized with an infection that started in my lungs and was misdiagnosed as asthma at Wesley Long, but turned out to result in pneumonia. My violent coughing resulted in what a pulmonologist (I have seen so many doctors, I can't recall all their names) referred to as something like septic emboli, meaning little balls of infection, becoming lodged in my heart, resulting in endocarditis. This nearly killed me and I ended up first at Moses Cone where I thought I had a muscle spasm in my back, and rapidly decompensated in the waiting room for the ER. After begging the triage nurse please to take a second EKG because I felt my heart rate and temperature skyrocket as well as pain spreading from my heart throughout my body via the major arteries, I was taken immediately into the ER and given multiple IVs and started immediately on vancomycin and heavy pain medication. I received many MRIs, cat scans, and other imaging procedures. Due to ill treatment by a particular nurse at Moses Cone, and filthy conditions on the ward, I checked myself out and transferred to Wake Forest where at first, I received much better care.
Fast forward about a week and a half, and I am informed at Wake Forest, after receiving my PICC line, that I would have to go to a nursing home in the middle of Davie County since they needed the space, and I was unable to prove that I would be able to administer IV antibiotics at home---also that without insurance or payment up front, no home health company would come to my house to administer them. So, I was forced to choose between a state nursing home far from friends and family where I would be isolated and subject to who knows what sort of care, or to accept oral antibiotics in hope that they would work (oral antibiotics are not at all shown to be effective in treating MRSA) and to be kicked out of the hospital. Of course, they call this leaving against medical advice. Additionally at the hospital, three sites where I was given an IV resulted in infected blood clots of some sort, and now the veins where they were inserted appear to be hard and unusable again. Along with these infected veins and a full body allergic rash, Wake Forest decided that discharging me was preferable to treating me further because of my lack of insurance.
I know that perhaps the nursing home would have been a better option but I simply cannot go away somewhere that I can't be in contact with anyone for seven weeks or more.
I am asking for this funding for a few reasons. First, I would like to be able to pay a home health company to come and administer the vancomycin because neither the doctors nor I am optimistic about the ability of a 4 week course of oral antibiotics to take the place of 7+ weeks of vancomycin, which is proven to treat MRSA.
In addition, I am hoping to be able to see a spinal specialist to try and find out why my leg is losing muscle tone and functionality, in the event that this partial paralysis become worse, or become permanent if it isn't already. The best I could get out of the hospitalists is that "yeah, something is wrong with the nerve" which is what I told them myself upon checking in. Finally, I have no way of telling if the antibiotics are working or not without further care, and I'd rather not let it get to the point where I am half dead in the ER waiting room again.
I'm scared for myself, and I have no close family who can help me with this. So I'm turning to my friends and other family to see if anyone would be able to help me at this time. I have a hard time asking for assistance from anyone, but I finally decided to just do it. The worst that can happen is that I look weak to you all, or that this just fails. I know the amount I requested won't begin to cover everything but it's a start, and might at least get me in the door with these people, and it's harder for them to deny you once you've started treatment. (Harder, but not impossible as I've learned.) I don't really know how these things work, but this is my appeal. Please feel free to ask me any questions you have about this.
Thank you for reading this novella I have written, and for anything you can do for me in my time of need.
I am currently fighting some serious infections, one of which is the return of MRSA and this time it is manifesting in my blood and as osteomyelitis in my spine. It has picked this delightful moment to infect me when I was already suffering an undiagnosed difficulty with my discs and nerves again, this time resulting in partial paralysis of my right leg. Dr. Shaffer at Wake Forest, of whom we will speak soon, has informed me that this paralysis could become permanent if I can't figure out a way to get it treated properly. Paralysis aside, I cannot even stand up for more than about a minute at the most, nor walk. Tyler has been pushing me around in a whieelchair when we go into public, or I've been using a walker which helps somewhat. I'm only 36.
So I was recently hospitalized with an infection that started in my lungs and was misdiagnosed as asthma at Wesley Long, but turned out to result in pneumonia. My violent coughing resulted in what a pulmonologist (I have seen so many doctors, I can't recall all their names) referred to as something like septic emboli, meaning little balls of infection, becoming lodged in my heart, resulting in endocarditis. This nearly killed me and I ended up first at Moses Cone where I thought I had a muscle spasm in my back, and rapidly decompensated in the waiting room for the ER. After begging the triage nurse please to take a second EKG because I felt my heart rate and temperature skyrocket as well as pain spreading from my heart throughout my body via the major arteries, I was taken immediately into the ER and given multiple IVs and started immediately on vancomycin and heavy pain medication. I received many MRIs, cat scans, and other imaging procedures. Due to ill treatment by a particular nurse at Moses Cone, and filthy conditions on the ward, I checked myself out and transferred to Wake Forest where at first, I received much better care.
Fast forward about a week and a half, and I am informed at Wake Forest, after receiving my PICC line, that I would have to go to a nursing home in the middle of Davie County since they needed the space, and I was unable to prove that I would be able to administer IV antibiotics at home---also that without insurance or payment up front, no home health company would come to my house to administer them. So, I was forced to choose between a state nursing home far from friends and family where I would be isolated and subject to who knows what sort of care, or to accept oral antibiotics in hope that they would work (oral antibiotics are not at all shown to be effective in treating MRSA) and to be kicked out of the hospital. Of course, they call this leaving against medical advice. Additionally at the hospital, three sites where I was given an IV resulted in infected blood clots of some sort, and now the veins where they were inserted appear to be hard and unusable again. Along with these infected veins and a full body allergic rash, Wake Forest decided that discharging me was preferable to treating me further because of my lack of insurance.
I know that perhaps the nursing home would have been a better option but I simply cannot go away somewhere that I can't be in contact with anyone for seven weeks or more.
I am asking for this funding for a few reasons. First, I would like to be able to pay a home health company to come and administer the vancomycin because neither the doctors nor I am optimistic about the ability of a 4 week course of oral antibiotics to take the place of 7+ weeks of vancomycin, which is proven to treat MRSA.
In addition, I am hoping to be able to see a spinal specialist to try and find out why my leg is losing muscle tone and functionality, in the event that this partial paralysis become worse, or become permanent if it isn't already. The best I could get out of the hospitalists is that "yeah, something is wrong with the nerve" which is what I told them myself upon checking in. Finally, I have no way of telling if the antibiotics are working or not without further care, and I'd rather not let it get to the point where I am half dead in the ER waiting room again.
I'm scared for myself, and I have no close family who can help me with this. So I'm turning to my friends and other family to see if anyone would be able to help me at this time. I have a hard time asking for assistance from anyone, but I finally decided to just do it. The worst that can happen is that I look weak to you all, or that this just fails. I know the amount I requested won't begin to cover everything but it's a start, and might at least get me in the door with these people, and it's harder for them to deny you once you've started treatment. (Harder, but not impossible as I've learned.) I don't really know how these things work, but this is my appeal. Please feel free to ask me any questions you have about this.
Thank you for reading this novella I have written, and for anything you can do for me in my time of need.
Organizer and beneficiary
Arsalan Delavar Morvarid
Organizer
Greensboro, NC
Danilee Eichhorn
Beneficiary