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Hemispherectomy Brain Surgery

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Abby was born at 23 weeks, weighing just shy of 1 lb when she was born, Abby spent 6 1/2 months in NICU fighting for her life with many many complications along the way, along with many residual health complications due to being born so early, Abby is 8 almost 9 years old, and in these 9 years has faced many many trials and overcame so much. At just a year old Abby had her first brain surgery for Hydrocephalus and a cyst on her brain, shortly after her first brain surgery, Abby started having major seizures that hospitalized her every-time she had one, Abby has 3 different types of epilepsy that complicate her everyday life. Abby faces many other complications everyday along the lines of cerebral palsy, Developmental delays, lung issues, and obstacles every day just to do every day life activities, walking, and using her arms and hands are some of the obstacles she faces everyday, Abby has been through 3 brain surgeries in 8 years. In 2018 Abby had a Vagus Nerve Stimulator placed to try and help with her epilepsy, as it was deemed if we don't get her seizures under control that one day they will end up taking her life. Shortly after her VNS placement, Abby ended up having a 38 hour seizure that almost took her life, she was hospitalized and ventilated for quite some time, As time has gone on her seizures have progressed and now we are looking at brain surgery #4, its called a Hemispherectomy, it is a VERY invasive brain surgery, the brain surgery itself can take 8-12 hours, it includes going in and completely removing the frontal lobe of the left side of her brain, and completely shutting down the whole left hemisphere, completely disconnecting it from the right side of her brain. The goal is to stop the seizures all together, after 5 years into the VNS and we are now having complications with it. Abbys epilepsy is spiking once again, the surgery is going to put me out of work and just for the testing alone before we do the surgery I will be out for at least two weeks, the testing includes a week to two weeks inpatient to completely stop her epilepsy medication to pin point the exact location of her seizures, then we have to travel to Orlando for what they call MEG testing, MEG testing is a test that uses sensors to form an image of magnetic fields produced within the brain. Then when we do have the surgery, Abby will be inpatient in the hospital for up to 2 weeks at the least, after those 2 weeks she will go to an inpatient rehabilitation center and be inpatient for a month to 2 months, if everything goes smoothly. Abby will have to relearn to walk, talk, and use her hands and arms, she will have to relearn how to do everyday functions shes been doing for the last 8 almost 9 years! As most know we have 3 other kids at home, all of them young and we need to be able to keep a head on the bills, and help pay someone to help with the other kids so dad can at least work. Abygayle is going to be in hospital and we will need funds to help with food, gas and every day necessities. Donations would be so appreciated so we can focus on Abygayle and take one less stress from us.

If you don't want to donate via gofundme I do have cashapp my cashapp is
$Kimfield072119

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Organizer

Kimmer Jones
Organizer
Macon, GA

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