HENLEY MOUNTFORD-FARMER

Hi my name is Henley Mountford-Farmer,

I live in Leeds village with my mum Kali.

We are a single parent family and my mum does an amazing job looking after me.

I have been asked to write about myself but I am only 5 so my mums going to tell my story.

Henley was born with gastroschisis which means his bowel is on the outside of his body.

He needed emergency surgery when he was born. He only has 50% of his bowel remaining.

Henley is unable to absorb nutrients so is fed through a central line which goes straight into the right atrium of his heart.

Henley is connected to a machine 20 hours a day. He carries a machine in a little suitcase all day long to keep him alive. People often think i am off on my holidays!!

Henley also has ketonic hypoglycaemia a growth hormone deficiency, multiple skin allergies, eczema, hyper mobility, enlarged liver and spleen and can’t control his body temperature.

Doctors have now hit a point where there is no more they can do for him. The long term use of a TPN causes liver failure and damages other organs.

Henley is prone to infection and suffers from febrile convulsions, fatigue, dehydration and anemia.

Despite all of this Henley most of the time is a very happy little boy and never asks for much.

He loves to be outside in the fresh air when he is well enough but often he has to spend weeks/months in hospital.

He has one big wish and that is to have 3 chickens in his back garden. 1 white, 1 grey and 1 brown and a lovely chicken house for them to live in. He would also love a play area in his garden with rubber chipping in case he falls.

He knows this will cost lots of money.

If anyone could help me make Henley’s wishes come true we would both be so very grateful.