Princess Tillie Mae

Hi we have set this page up to raise funds for Tillie Mae, Tillie Mae has a rare condition called Sanfilippo , unfortunately this is a life limited illness. Most children do not make their teenage years. Tillie will loose the ability to walk, talk and eat.  After lots of support on Facebook from friends and family we agreed to set up this page.  We  were overwhelmed with the amazing support and kind donations to help us fund a speaclist chair for Tillie Mae in 2014.

 In August 2016 sadly Tillie Maes clinical trial closed leaving us devastated.  With no treatment and no cure for Sanfilippo we can't give up hope.  We want to raise funds for much needed research and potential treatments.  As well as specialist equipment Tillie Mae will need as her condition progresses .  There's also lots of people wanting to fundraise for Tillie to benifit directly. So sponsors can be made to this page too. We thank each and every one of you that takes the time to read our story , donate and  shares our link. Your support  makes a huge difference to  Tillie Mae. Thank you