A Home for Mark and Tonya
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Mark and Tonya are a homeless couple. Mark had been the assistant manager at a furniture store, his salary supporting his mother and child. His partner Tonya had been a nurse until she was stricken with systemic lupus.
They are currently living a trailer with no running water on a friend's property.
That is where Mark is spending his final days.
It started with a wound on his face that would not stop bleeding. He was diagnosed with a "minor infection," prescribed medication, and sent home. He returned to the doctor when the side effects became too much to bear. The doctor took a culture but couldn't give an answer. A clinic ordered a PET scan and callously assumed the wound on his face was the result of an addiction. Mark's 18-month shuffle between various hospitals, doctors, patient advocates, and insurance companies began. The diagnosis of cancer was not made until April 2014, long after he'd begin to lose part of his nose.
Since then, Mark has lost nearly seventy pounds, his nose, and an eye. Medical professionals have determined that his condition is "too complicated" for them to treat, as he oscillates between recurring infections and the increasing aggressiveness of the malignancy; the chemotherapy and radiation treatments suggested by his oncologist could prove deadly. Tonya describes the multitude of proverbial doors that have been slammed in their faces: the Social Services resources that he has allegedly exhausted, the medical expenses that are not covered by Medicaid, the lack of communication between healthcare establishments that has delayed the delivery of the initial biopsy to the proper hospital.
In the meantime, Tonya does whatever she can to make Mark comfortable, even as she herself struggles with systemic lupus. And Mark is left with little more than hoping for a pain-free day and a chance to watch some television.
They have done a lot of hoping - for the next doctor, the next hospital, the next door to be the miracle they're waiting for.
To me, this is not only heartbreaking. This is a travesty. No one in this nation of plenty, regardless of their income, should have to die without decent shelter, or unable to receive adequate medical care.
But perhaps even more tragic is the fact that if we sit by idly, we allow it to happen.
I pray that we can work together to find adequate and humane housing in which Mark can comfortably spend his final days.
Peace and love to you all.
Organizer and beneficiary
Lisa Rose Ferrara
Organizer
Freehold, NJ
Tonya Henderson
Beneficiary