Hope for Ashleigh - In Memory of Luke Howard
Donación protegida
Ashleigh is the daughter of my friend Matt, she was born in the UAE on January 3rd 2019. My son Luke died 10 years ago on July 14th 2009, 10 years ago, he was 21. Ashleigh is a twin, she was born with a life limiting condition which means she'll need specialist help through her life.
Luke adored babies and young children and would have loved to help this lovely little girl and her family, any donation will help to do that and would be a fitting memorial to a caring young man.
Medical Summary:
Ashleigh has significant and widespread brain abnormalities. Many children with her symptoms do not survive to adulthood.
Her brain abnormalities will lead to moderate / severe developmental delays, specifically regarding:
Motor function, feeding, speech and language, learning development
Her overall prognosis is that of requiring ongoing medical support / care for life, via dedicated full-time home nursing / family caregiving, supplemented by regular hospital treatments for a variety of subspecialities to include:
Orthopedics
Gastrointerology
Physiotherapy / rehabilitation
ENT / Opthamology
Neurology
Geneticists
Metabolicists
Pediatrics
She has been recognised by UAE Govt as being a 'Person of determination' - basically a registered disabled person, but in that country the help is limited and Ashleigh needs help in order to help her live her best life.
Ashleigh born at 2:26 pm on January 3rd 2019
Luke 2-10-1987 to 14-07-2019
Luke adored babies and young children and would have loved to help this lovely little girl and her family, any donation will help to do that and would be a fitting memorial to a caring young man.
Medical Summary:
Ashleigh has significant and widespread brain abnormalities. Many children with her symptoms do not survive to adulthood.
Her brain abnormalities will lead to moderate / severe developmental delays, specifically regarding:
Motor function, feeding, speech and language, learning development
Her overall prognosis is that of requiring ongoing medical support / care for life, via dedicated full-time home nursing / family caregiving, supplemented by regular hospital treatments for a variety of subspecialities to include:
Orthopedics
Gastrointerology
Physiotherapy / rehabilitation
ENT / Opthamology
Neurology
Geneticists
Metabolicists
Pediatrics
She has been recognised by UAE Govt as being a 'Person of determination' - basically a registered disabled person, but in that country the help is limited and Ashleigh needs help in order to help her live her best life.
Ashleigh born at 2:26 pm on January 3rd 2019 Luke 2-10-1987 to 14-07-2019Organizador
Debbie Knight
Organizador