Hope for Snow to live with a Happy Normal Heart

Hi! My name is Snow Brielle. I was born a little different. Doctors said, My heart isn’t functioning as to how it’s supposed to be. For me to have a higher chance of living a normal life, I needed three surgeries. First surgery can only be performed once I turned 8 months. But right now, I am not very well. I am currently intubated in the ICU to help me on my breathing. But I am a fighter, and as much as possible, I will continue to fight, my heart is too big and I wanted to grow up full of love in my heart to share it all to you.

The thing is, our hospital bill is piling up. I am surrounded by family and friends that support me in every way but I would like to humbly ask for your support too. I’ve got so much more life to live! I’m certainly not ready to leave the world yet. There’s a good chance I can win this fight and I’ll do whatever it takes. The coming months or more, will be a huge financial drain, I have Mum and Dad and everyone who loves me but you can help me immensely with a donation.

Here’s the first interpretation to my condition:

 

Normal abdominal situs

Apex on the left side of the chest

IVC drains to the right sided right atrium

All four pulmonary veins drain to the left sided left atrium

Atrial septal defect, primum measuring 1.6cm, with bidirectional shunting; secundum, 0.9cm, with bidirectional shunting

Ventricular septal defect, outlet, measuring 1.4cm, with bidirectional shunting

Single inlet, Double outlet

Atretic mitral valve

Tricuspid regurgitation, severe, with vena contracta of 0.4cm, RF 32%, and TR jet of 64mmHg, with jet reaching the roof of the right atrium

Dilated right atrium, right ventricular enlargement

Good right and left ventricular systolic function

The aorta is anterior and to the right of the pulmonary artery

The pulmonary artery is posteriorly located
Both great arteries arises from the right ventricle

Pulmonary stenosis, valvar and subvalvar, severe, with max SPG of 70mmHg

Confluent and good sized pulmonary arteries, measuring RPA 0.7cm (Z-score +1), LPA 0.6cm (Z-score +1)

Right sided aortic arch

No Patent ductus arteriosus

No coarctation of the aorta

The aortic arch measurement as follows:

Aortic valve annulus: 0.8cm (Z-score: 0)

SOV: 0.8cm (Z-score: -3)

Sinotubular junction: 0.8cm (Z-score: -2)

Ascending aorta: 0.8cm (Z-score: -1)

Proximal transverse arch: 0.7cm (Z-score: -1)

Distal transverse arch: 0.5cm (Z-score: -1)

Isthmus: 0.4cm (Z-score: -2)

Descending aorta: 0.8cm (Z-score: +1)

 

 

 

Final Interpretation:

Congenital Heart Disease

Single inlet, Double outlet

Atrial septal defect, secundum and primum

Double Outlet Right Ventricle

Malposed great arteries

Pulmonary stenosis, valvar and subvalvar, severe

Thank you.

UPDATE: 15/04/2023

Hi everyone, it is with an unexplainable sadness to share and update you, Baby Snow has passed away.

Few days ago, she was in stable condition and can be seen awake and smiling in the camera. Her breathing became normal, so they decided to perform some test to see if she’s able get a surgery as early as now. They tried removing the tube to see if she can breathe on her own, but failed. Tube was put back and she became okay.

But tonight, we received a news from the hospital that she was slowly deteriorating, Parents, Lex and Pie were not even able to make it to the hospital to see Snow alive for one last time. It was so painful that even just typing this update is so hard.

we would like to express our gratitude to those who helped monetarily and our prayer warriors who stormed the heaven for Snow’s healing. We will still ask for your help whatever it may be to assist Snow’s family financially.

I’ll post a photo of Snow here where you can see her smiling, that’s what she will be remembered of. Smiling Snow. :)