Ariana's Medical Fund

Our daughter at the age of 15 was diagnosed with Familial Adenomatous Polyposis on September 2013.
Not only is this disorder extremely rare, she has been one of few people that have had it so aggressive. This genetic disorder causes colon and rectal cancer. This disorder also puts her at a higher risk of also having cancer in her stomach and small intestine. She has had thousands of pre-cancerous polyps on her colon and rectum. She had to have surgery to remove the entire colon and rectum to minimize the chances of cancer. Sadly, she has had severe complications for over a year and half now. She has had several abdominal abscess, blood infections, small intestinal failure and blockages, ileostomy bag, hydration treatments, TPN treatments, 8 surgeries, complications during and after surgery,  and countless procedures. She spends most of her teenage life in the hospital and will have lifelong medical needs. At this point, she is unable to tolerate food by mouth and needs to have feedings by G-Tube. She's unable to retain most of the nutrition, hydration,  and is having a hard time gaining weight which causes her to be weak and be restricted to minimal activities.  As a family we have not only struggle physically and emotionally, but also financially. My husband and I have full time jobs with medical insurance; however, the insurance does not pay for all of her needs. Her feedings are not covered by insurance and they are very expensive. Since her digestive needs are very sensitive, she has to be on a special feedings called Peptamen Junior which is a formula that is pre-digested. She is on feedings 24 hours a day  7 days a week. We have to purchase 2 cases per week and each case is $150. If you add that up per year, it is over $15,000 per year. She has a great doctor here in El Paso who has supported us both medically and personally but even he has run out of answers and solutions. El Paso is limited in their advances in medicine. She is still getting polyps in her stomach and it was suggested to us that we take her to a specialist who is located out of state. We have accured hundreds of thousands of dollars in medical bill which makes it difficult to keep up with deductable demands for future treatment and studies. We have tried to get Medicaid and other assistances but we are middle class and do not qualify. 

As parents, we do want to express that we are very proud of our daughter. God has blessed us to have such a beautiful and strong daughter whom we have learned so much from.