Living with Hyperadrenergic POTS

After over 2 years of passing out every day I have been diagnosed with Hyperadrenergic Postural Orthostatic Tachycardia Syndrome (Hyper-POTS). This basically means that when I am standing my blood pressure and heart rate rise which causes a syncopal episode. Over the past few years I have gone from passing out a few times a week to passing out 3-5 times a day. After dozens of emergency room visits (some by ambulance) and to many staples, stitches, and concussions to count I am now wheelchair bound to prevent further injuries. I am unable to drive or work and do not qualify for disability due to my limited work history. My search for answers and treatments has taken me to several cardiologists, neurologists, and other specialists. I have traveled to the Mayo Clinic and Stanford Hospital along with many local doctors. I am still looking for the treatment that will work and allow me to go back to living a full life. In the meantime I have accumulated thousands of dollars in medical bills and travel expenses and desperately need help to finance these and future medical expenses. This has been an extremely difficult time for myself and my family and any help on this journey is greatly appreciated!!