IFightForJames Joshua & Myles - accessibility FUND
Donation protected
When our first son James was born, we all believed him to be a happy healthy little baby. He grew into a cheeky little chap, lover of Lego, cars and football and full of character. After growing concerns over his development and lack of physical strength, James was referred for blood tests. Then 23/12/2013 at aged 7, he was diagnosed with the severe progressive muscle wasting condition Duchenne Muscular Dystrophy. It is a life limiting condition and is currently incurable. It affects mainly boys at about 1 in every 3,500 and girls at around 1 in 50 million.
Just a just a few days later and still in shock from James’s diagnosis our beautiful twin boys Joshua and Myles were born. We later learned that they sadly also have the same devastating condition.
During the last few years, we have dedicated our spare time to fundraising for research into a cure for all those affected by Duchenne Muscular Dystrophy. With the help and support of our family and friends, we have raised £91,000 for Muscular Dystrophy UK, under our family fund name I Fight For James. In 2018 Gabby Logan awarded I Fight For James the President’s award for Fundraiser of the Year.
However, as the boys’ condition starts to deteriorate, and James in particular is now becoming less mobile and more dependent on a wheelchair, we have had to turn our attention to their needs and future requirements. We have therefore started raising funds for them, to help give a better quality of life.
We are currently raising funds towards a wheelchair accessible vehicle (WAV) in order that we can continue to enjoy holidays and outings as a family, being able to transport a bulky electric wheelchair. This will also enable us to help the boys enjoy the things we often take for granted and keep the boys socially active in the community with their own groups of friends.
We are truly blessed to have the support of friends, family and the wider community in our fundraising efforts. Though we will continue to raise funds and awareness to support MDUK, we are grateful for this opportunity to raise funds towards our personal cause.
We thank you for any donations you are able to make, no matter how big or small.
Sean & Liz Keenan
Just a just a few days later and still in shock from James’s diagnosis our beautiful twin boys Joshua and Myles were born. We later learned that they sadly also have the same devastating condition.
During the last few years, we have dedicated our spare time to fundraising for research into a cure for all those affected by Duchenne Muscular Dystrophy. With the help and support of our family and friends, we have raised £91,000 for Muscular Dystrophy UK, under our family fund name I Fight For James. In 2018 Gabby Logan awarded I Fight For James the President’s award for Fundraiser of the Year.
However, as the boys’ condition starts to deteriorate, and James in particular is now becoming less mobile and more dependent on a wheelchair, we have had to turn our attention to their needs and future requirements. We have therefore started raising funds for them, to help give a better quality of life.
We are currently raising funds towards a wheelchair accessible vehicle (WAV) in order that we can continue to enjoy holidays and outings as a family, being able to transport a bulky electric wheelchair. This will also enable us to help the boys enjoy the things we often take for granted and keep the boys socially active in the community with their own groups of friends.
We are truly blessed to have the support of friends, family and the wider community in our fundraising efforts. Though we will continue to raise funds and awareness to support MDUK, we are grateful for this opportunity to raise funds towards our personal cause.
We thank you for any donations you are able to make, no matter how big or small.
Sean & Liz Keenan
Fundraising team: Team IFFJ (5)
Elizabeth Keenan
Organizer
England
Stuart Bradney
Team member
Brona Morgan
Team member
Becky Spicer
Team member
Darryl Morgan
Team member