Iley's PROS Journey

Hi, my name is Lora and I'm fundraising for my daughter, Iley. Iley has a very rare disease called PROS. Pik3ca related overgrowth spectrum is a genetic condition that is not inherited. It can show up anywhere on a person's body. Iley's PROS happens to be on her right leg preventing her from being able to walk properly without pain. We are traveling to Nashville which is four and half hours away. Iley's kneecap is out of place from the fatty tissue. The doctor is going to remove the overgrowth, straighten her knee cap and replace tendons and ligaments. The plastic surgeon is going to try liposuction to debulk her leg. She also has a large bone spur on the top of her foot that prevents her from putting her foot flat on the floor. They are going to remove the bone spur. They are also going to remove the top of her toe so she will be able to fit shoes better. We will be making at least 20 trips to Nashville. Our van has over 240,000 miles on it, so we have to rent a car for each trip until we can afford to buy a new vehicle. With the rental, gas, and food we spent $300 last trip. If the liposuction does not work we have found a doctor in Wisconsin that can help us so we may end up traveling out of state. Please help if you can. Everything is deeply appreciated. We also would like your prayers. God has been good to us and watched over us each trip we've had to take. Thank you!!

You can follow her journey on Facebook. I'm still new at this and don't know how to link but her profile is under Lora Waddle.