In Rosie's memory, lets get Lottie to Disneyland

Hello everyone,

I just cannot believe I am sat here writing this. Part of me is still hoping this is just a bad nightmare we all may wake up from. We are ALL so so lost for words. How will we never ever see you again :( Rose, I promised you id hold it together for your baby girl Lottie, therefore I will keep to my word and share your story to hopefully give comfort to anyone else that is facing the horrendous sentence of being a Type 1 Diabetic. Rosie passed away at just 30 years old.

Rosie was Type 1 diabetic since the age of 11. She thought a long hard battle during secondary school, trying to come to terms with the fact that she was different to all of her friends. Embarrassed to inject, conscious of her weight and petrified of having a hypoglycaemic episode whilst at school. Rosie spent a lot of time at home. She never really did accept the sentence of being type 1, and after what she went through... WE CAN'T BLAME HER!

Rosie later went on to leaving school, working full time and then she became a mum to the most beautiful baby girl Lottie at the age of 19. Rosie was made to be a mum. You know how some people are just natural and put on this planet to take care of others. That was our Rose!! I guess she got it from looking out for me- her not so little, little sister. Lottie and Rosie were like best friends throughout Lottie's early years. They were always giggling and no matter what happened, Rosie would take it in her stride.

Fast forward to when Lottie was around the age of six, Rosie was still battling with her diabetes and found herself in and out of hospital. Rosie began to experience symptoms of a condition called Gastroparesis. In simple form, Rosie's digestive system was faulty due to diabetic nerve damage. This resulted in not being able to eat a single crumb without vomiting half an hour later and so on. Rosie's mental health was impacted and after facing these issues for more than 5 years, Rosie was given botox treatment into the damaged area and also a feeding tube to use at home. By this point Rosie was already dangerously underweight. Despite all of the above, and believe me there is so much more we could tell, she NEVER gave up hope and NEVER gave up on her Lottie. Lottie was at the heart of soul of everything Rosie would do. They loved each other so much. Lottie even became a part of the young carers organisation, in order to learn CPR and other life essential skills, in order to take care of her mummy. We are all so proud of you Lottie.

Now the extremely hard bit...

Following the Covid 19 pandemic, earlier this year in March 19 Rosie was admitted into West Middlesex hospital Intensive care unit with Pneumonia. Rosie struggled at home for a long time during Covid and like many, felt safer at home than at the hospital. Rosie became swollen in her legs and feet due to her on going stage 3 kidney disease (also secondary to being Type 1). Lottie would help dress her mum, help make her lunch, clean and tidy the house, make her mum her favourite drinks for comfort, give her love and the list goes on... Rosie's best friend Kevin would always be there too, but little Lottie gave Rosie something nobody else could give her. And that was determination.

Myself (Daisy) and mum drove to the hospital everyday and visited Rose whilst she was in West Middlesex hospital. She woke up after her first few weeks of being ventilated and said to us "Why the f**k have they removed my voice box" and then fell asleep again. Her sense of humour never left. We later explained that she had a temporary tracheostomy in order to ventilate her whilst being awake. Whist being in hospital, Rosie suffered a cardiac arrest, fluid around the heart and recurring pneumonia. But she battled on and on knowing she had her little Lottie to fight for. There was a stage where Rosie was doing really well and physio therapists were assisting her to sit at the edge of the bed. At this point, Rosie was moved to Chelsea and Westminster hospital due to ITU being short of beds and a new outbreak of Covid 19 had hit the Hounslow borough.

However, unfortunately due to being on a ventilator and in bed for 6 long months, Rosie's body became resistant to most of the anti biotics and treatments. Rosie had over 40 anti biotics throughout her stay in hospital and was a fighter right up until Monday night 30th August 2021. Monday day myself and mum spent hours at the hospital sitting with Rosie, talking to her and keeping her calm despite us both knowing the hospital had ran out of options. We all kept praying and we were all in this together. We received a phone call on Monday, and it was the dreaded news that no family should EVER have to face. Myself, mum, Lottie, Lottie's father, Cousin Louise and the hospital priest held onto Rosie as she deteriorated, telling her how much we love her, how proud of her we are and reassuring her that we will do everything we can to give Lottie the future my sister always dreamed of. Rosie passed away at 21:57pm on Monday 30th August 2021, after a long hard battle with pneumonia, multi organ failure, renal failure and Type 1 diabetes.

We love you so much Rosie and are so so proud of all the things you achieved during your short time. You didn't deserve this. You raised such a beautiful young lady and I promise with all my heart, that little girl will have the life you always wished for. As a family, we have decided that flowers are going to be welcome from immediate family members only. Rosie loved taking Lottie on holiday to Butlins, Haven, Gran canaria, Tenerife etc, however always dreamed of taking Lottie to Disneyland. If you wish you leave a donation, it would make Lottie and Rosie's dreams come true as a contribution towards Lottie's dream holiday. Our family would like to thank everybody for their kind words, flowers and gifts during the hardest week of our lives, and we sure know we are not alone in how much we are going to miss Rose. We know Rosie would prefer Lottie received a gift for her amazing bravery and unconditional love she gave to her mum, than receive flowers. We hope you can all understand, and will be announcing the date for Rosie's day of rest soon. We love you Rosie. We miss you so much our beautiful angel. xxx