Indy’s VACTERL association

Indy was born with a rare disorder called Vacterl  Association.

VACTERL association is a disorder that affects many body systems. VACTERL stands for vertebral defects, anal atresia, cardiac defects, tracheo-esophageal fistula, renal anomalies, and limb abnormalities. People diagnosed with VACTERL association typically have at least three of these characteristic features. Affected individuals may have additional abnormalities that are not among the characteristic features of VACTERL association.

VACTERL association occurs in 1 in 10,000 to 40,000 newborns

Our little Indy is so far missing two body systems, and has abnormalities in other areas. In December of 2021 she had her first unsuccessful surgery, which showed us her issues are more serious than we realized. She is now looking at multiple surgeries rather than one.

With Indy’s disorder she requires an entire team of doctors. Indy will be traveling to a medical team in Houston for the time being. 

We appreciate any support or generosity in our journey to get Indy where she needs to be. 

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God Bless.