Inhaler case for our CF Clinic kids
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I am fundraising a gift for my Cystic Fibrosis clinic.
Cystic Fibrosis is an inherited life-threatening disorder that damages the lungs and digestive system.
Cystic fibrosis affects the cells that produce mucus, sweat, and digestive juices. It causes these fluids to become thick and sticky. They then plug up tubes, ducts, and passageways. CF also causes your body to not produce enough digestive enzymes. Kids have to start taking medicine before every meal as soon as they are diagnosed. Almost every child with CF is diagnosed with asthma or has an inhaler to help airway clearance.
My son Theodore was diagnosed at 3 weeks old. He is currently 3 years old. When he was diagnosed we were told that he was not supposed to go to daycare due to the germs and weakened immune system. When he was 2 years old after being sick for a year and then being healthy for a year he was cleared to go to a part time day care program. I was very nervous putting his health in other people's hands for part of his day. But one of the things I have always taught him is that he needs to be responsible for his health as well.
I was very excited, because I thought that day would never come. I was more excited that I was going to be able to buy him a backpack and a lunch box for the 1st time. I chose to go with pottery barn kids after a recommendation from my sister. When I received my order I cried with tears of joy. His backpack said our last name and his lunch Box says "Take Meds". After looking long and hard, I decided that I wanted to try out one of their pencil cases to hold his medication inside of his lunchbox. After receiving it I realized that his inhaler also fit inside the pencil case. So I proceeded to order a second pencil case monogrammed with "inhaler".
At a recent clinic visit his doctor saw his lunch box and thought it was so smart. I showed him the pencil cases that I had also gotten made. He was very impressed by them and also by the fact that I felt it was important for Theo to start learning from a young age how to manage his CF.
Our CF clinic here in Atlanta GA has roughly 360 patients. Not everybody is in the financial position that we were in on being able to treat our kids with a nice backpack, lunch box, and the extras just because. I feel that it is extremely important that a child who has a lifelong condition can start learning the simple responsibilities from a young age. I was hoping that I might be able to help me with getting some pencil cases made.
I am hope to get 4 styles made at this moment. Hearts, dinosaurs, unicorns, and construction trucks!
Organizer
Miriam Zimmerman
Organizer
LaGrange, GA