Jackson's Journey-Jackson Mattoon
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Jackson Mattoon's Story
Jackson is the son of Jeremy Mattoon, our good friend and lacrosse brother. Jackson has been stricken with PANS/PANDAS recently, you can read the excerpt below from the Facebook page chronicling the family's journey.
While Jeremy and his wife are not asking for help, we are asking for them as their medical bills are and will continue to mount to exhorbitant sums. Let's all pitch in a little bit each and help, please send this link around to everyone!!
Excerpt from Jackson's Journey FB page:
Two very important points in this article.
1). Streptococcus is the causative agent of most respiratory infections. This means ear, sinus, chest congestion/infections. PLEASE READ THAT AGAIN.
2). This article makes it seem so simple. Your child wakes up different one day. You go to the hospital, they test you for pandas and start treatment. Reality is quite the contrary. There is a general unintentional ignorance about the disease and also a large part of the medical community that chooses to dispute the scientific evidence supporting the disease.
We are now an official member of the PANS/PANDAS community. We have met far too many parents whose children were not or misdiagnosed.
The hardest part of this disease is the navigating we as the parents have to do. The navigating around the medical community that refuses to treat our children. Countless hours are spent discussing with parents who walked this road before us- and making sure we don’t run into the “wrong” medical teams.
https://www.moms.com/what-every-parent-needs-to-know-about…/
Jackson is the son of Jeremy Mattoon, our good friend and lacrosse brother. Jackson has been stricken with PANS/PANDAS recently, you can read the excerpt below from the Facebook page chronicling the family's journey.
While Jeremy and his wife are not asking for help, we are asking for them as their medical bills are and will continue to mount to exhorbitant sums. Let's all pitch in a little bit each and help, please send this link around to everyone!!
Excerpt from Jackson's Journey FB page:
Two very important points in this article.
1). Streptococcus is the causative agent of most respiratory infections. This means ear, sinus, chest congestion/infections. PLEASE READ THAT AGAIN.
2). This article makes it seem so simple. Your child wakes up different one day. You go to the hospital, they test you for pandas and start treatment. Reality is quite the contrary. There is a general unintentional ignorance about the disease and also a large part of the medical community that chooses to dispute the scientific evidence supporting the disease.
We are now an official member of the PANS/PANDAS community. We have met far too many parents whose children were not or misdiagnosed.
The hardest part of this disease is the navigating we as the parents have to do. The navigating around the medical community that refuses to treat our children. Countless hours are spent discussing with parents who walked this road before us- and making sure we don’t run into the “wrong” medical teams.
https://www.moms.com/what-every-parent-needs-to-know-about…/
Organizer and beneficiary
Ricky Schwartzberg
Organizer
Annapolis, MD
Jeremy Mattoon
Beneficiary