
Jacob's Williams Syndrome Fundraiser
Donation protected
Jacob Owen from Neath has recently been diagnosed with the rare genetic condition 'Williams Syndrome' and has already undergone Open Heart Surgery at just 14 months old.Jacob's Parents Mark and Natasha would like to raise awareness of this rare condition and fundraise for other families affected by Williams syndrome. To do this, Jacob’s Dad Mark will be taking on a gruelling non-stop sponsored 85 Mile walk on Saturday, November 14th. Any donations will be greatly appreciated. What is Williams Syndrome?Williams syndrome (WS) is a genetic condition that affects 1 in 10,000 people worldwide. It is present at birth and can affect anyone. It is characterized by medical problems, including life-threatening cardiovascular problems, developmental delays, and learning challenges. These often occur side by side with striking verbal abilities, highly social personalities and an affinity for music.
Organizer and beneficiary
Mark Owen
Organizer
Natasha Owen
Beneficiary