Jade’s neurology and rare migraine specialist

*^*^* Update *^*^*

I have an appointment booked in the new year for one of the best migraine clinics in the U.K. Jan 2023.

So incredibly grateful.

Jadey Miss Lady likes to make and entrance and it’s usually chaotic, but all in good fun and with the aim of spreading joy and usually glitter! 

Sadly the joy spreading has been SUPER difficult recently with Jades diagnosis’s of ….

Functional Neurological Disorder (FND) 2018

Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) 2019

and the recent discovery of 

Hemiplegic migraines 11/2022 

which I’m still waiting for my emergency Neurology appointment.

Which the GP said wont happen until Feb/March 2023!

Also awaiting an ADHD assessment (18 months waiting list)

 

I NEED to be seen by neurology, I need to see a rare migraine expert, and a genetic  councillor. I’ve waited far too long for some basic testing basic care and basic human empathy. 

I’ve been what I see to be true is MISDIAGNOSED for 4 1/2 years, treated with the wrong medications, put on long waiting lists and left to figure this whole new unable body out pretty much on my own!

Resulting in the position that I am in today.

I just can’t work like I used too I can’t pull the income in that I used to, I can’t do a lot of the things I used too.

But I’m so grateful for ALL I can do and will keep 

doing it! 

Grateful and thankful for all happy healthy memories and moments together  ❤️️

Jade Laforést

30 something Mutant Mermaid.